[momma3love]

Ugh...Well I still have a kidney infection. I went to see my regular doctor Tuesday to recheck and get this they lost my urine. I did not know until Friday when I called to find out what was going on. I had too full of a weekend to go to urgent care to get it all checked out. Which I had to really push myself to get through. I am really sure I still have an infection. My kidneys still hurt and I was retaining water over the weekend. So tomorrow I go back and hopefully they will get it right this time. Other than that my oldest son has strep throat which I get super easy. I have had a sore throat for awhile now but did not think much of it. So gotta get that checked tomorrow too.

On top of all that I got too much sun today when I went fishing with my boyfriend So obviously I am gonna pay for all of it at once. My stress load has also suddenly stacked up too high If only I could work life would be a bit simpler. But that would all take far too long to explain.

On the plus side I am recovering from surgery pretty well. I could almost swear I have already started to feel better. That might just be cause its easier to breathe without my huge thymus. And I think a coincidence, you know how the MG likes to play games of hide and seek. Well mine does every now and then.

I hope everyone is well or getting better Take care everyone!!!

Originally Posted by cricket001

How about we try this? Maybe everyone can check in and let us know what's going on with you...using this thread.

[ConnieS]

Yay! I'm going to see my neuro tmr and I've prepared a list of qns which I've learnt from all of u, to ask him tmr.

Am feeling extremely tired now after a conversation with my friend, its the mouth thing again. Do anyof you feel that your energy is being zapped from u with every task you do? My eyes keep watering, look as if I've not slept for days. Haha.. But today's a great day nevertheless!

Feel like my brain's not working now, am not processing properly, so pardon me if i'm not responding correctly to your posts..

Can't wait to hear from how everyone's doing. Am gonna go rest in bed now.. Can't take it animoreeee.... Lol. Check in tmr again!

[maryec]

Connie, Talking is a big drainer on me also, I have to excuse my self after a while, when I get calls from my talker friends, or mom. They just wear me out, my speach & energy still goes after a awhile. I know they get dissappointed, but they keep calling so they must understand !! LOL.........
Mary

[whirlwind123]

Hi everyone.,
I have finally tapered off the prednisone., so I was feeling a little tired from coming off of it, but I am feeling so much better without the side effects of the prednisone. My lymph nodes are a little swollen but I know they will go down eventually. We are in the process of getting an above ground swimming pool., with my husbands health problems., it will be good exercise for him he loves to swim. I am not a swimmer but I like to splash around. So it should be relaxing. I know I have to watch the heat and sun. So, I am actually feeling pretty good, when I am tired I rest., the vision is a little blurred gets really doubled at night, in the evening., but I feel very fortunate, especially after I read what all of you are going thru., right now it seems my symptoms are mild. Still waiting to get into the good neuro.,and I am not going back to the bad neuro, but my GP is taking good care of me. We are supposed to have a nice week here in Ohio., so I am hoping so, I feel so much better when it is clear and sunny out., we have some beautiful scenery from our back so it is nice to just sit and look out and relax. So that is what is going on with me.

[maryec]

Whirlwind, great to hear from you, I am glad things are going ok for you, I hope they stay that way, so you can get set up with the new Neuro.
The pool will be fun to have, I love getting new stuff !!!! LOL.....
Mary

[ConnieS]

Congrats Whirlwind! The pool sounds like a great idea. I will definitely be great to just splash around and relax. Good on you! Enjoy yourself!

Originally Posted by whirlwind123

Hi everyone.,
I have finally tapered off the prednisone., so I was feeling a little tired from coming off of it, but I am feeling so much better without the side effects of the prednisone. My lymph nodes are a little swollen but I know they will go down eventually. We are in the process of getting an above ground swimming pool., with my husbands health problems., it will be good exercise for him he loves to swim. I am not a swimmer but I like to splash around. So it should be relaxing. I know I have to watch the heat and sun. So, I am actually feeling pretty good, when I am tired I rest., the vision is a little blurred gets really doubled at night, in the evening., but I feel very fortunate, especially after I read what all of you are going thru., right now it seems my symptoms are mild. Still waiting to get into the good neuro.,and I am not going back to the bad neuro, but my GP is taking good care of me. We are supposed to have a nice week here in Ohio., so I am hoping so, I feel so much better when it is clear and sunny out., we have some beautiful scenery from our back so it is nice to just sit and look out and relax. So that is what is going on with me.

[ConnieS]

Lol.... Big High^ 5 to you Mary! I love talking too, so find it hard to make myself stop especially with my work. I'm an advisor so I love talking to my clients. =D Lol.. So am still hanging on with my conversations. Just can't bear to stop them... By the time I stop mouth's gone..

Originally Posted by maryec

Connie, Talking is a big drainer on me also, I have to excuse my self after a while, when I get calls from my talker friends, or mom. They just wear me out, my speach & energy still goes after a awhile. I know they get dissappointed, but they keep calling so they must understand !! LOL.........
Mary

[erinhermes]

Hope you feel better soon, hon! I know how it goes, one day you are on top of the world - crappy the next.........it will get better!
Big hugs!
Erin

Originally Posted by ConnieS

Yay! I'm going to see my neuro tmr and I've prepared a list of qns which I've learnt from all of u, to ask him tmr.

Am feeling extremely tired now after a conversation with my friend, its the mouth thing again. Do anyof you feel that your energy is being zapped from u with every task you do? My eyes keep watering, look as if I've not slept for days. Haha.. But today's a great day nevertheless!

Feel like my brain's not working now, am not processing properly, so pardon me if i'm not responding correctly to your posts..

Can't wait to hear from how everyone's doing. Am gonna go rest in bed now.. Can't take it animoreeee.... Lol. Check in tmr again!

[ConnieS]

Hey Erin, thanks so much. Am feeling better today, but just returned from my appt with my neuro which was time wasting. He kept saying i'm sure it'll go away after some time, though it may be a long time. Sensed that he wasn't too keen to help me locate an answer so told him that I won't be seeing him again!

The funny thing was I was in the midst of replying the posts when I saw that I posted I was seeing the neuro today. Totally forgot about that. Finally got to the appointment 1 hr later, only to "fire" my neuro. Lol...

The day will get better!!

Originally Posted by erinhermes

Hope you feel better soon, hon! I know how it goes, one day you are on top of the world - crappy the next.........it will get better!
Big hugs!
Erin

[erinhermes]

Sorry to hear you are feeling so poorly...I've never had a kidney infection but from what they heard, they are th pits!

Did you catch any fish? What type? Did you have fun?

I know I felt pretty great after my thymus was removed! It was wonderful!

Hang in there!
Erin

Originally Posted by momma3love

Ugh...Well I still have a kidney infection. I went to see my regular doctor Tuesday to recheck and get this they lost my urine. I did not know until Friday when I called to find out what was going on. I had too full of a weekend to go to urgent care to get it all checked out. Which I had to really push myself to get through. I am really sure I still have an infection. My kidneys still hurt and I was retaining water over the weekend. So tomorrow I go back and hopefully they will get it right this time. Other than that my oldest son has strep throat which I get super easy. I have had a sore throat for awhile now but did not think much of it. So gotta get that checked tomorrow too.

On top of all that I got too much sun today when I went fishing with my boyfriend So obviously I am gonna pay for all of it at once. My stress load has also suddenly stacked up too high If only I could work life would be a bit simpler. But that would all take far too long to explain.

On the plus side I am recovering from surgery pretty well. I could almost swear I have already started to feel better. That might just be cause its easier to breathe without my huge thymus. And I think a coincidence, you know how the MG likes to play games of hide and seek. Well mine does every now and then.

I hope everyone is well or getting better Take care everyone!!!