[Pat 110]

Originally Posted by redtail

I'm heading off to my Sisters to babysit dogs for a couple of days, so will be offline for a few days. Will be back at the end of the week.

Happy dog sitting Kate! Enjoy your visit...talk with you when you get back

Pat

[momma3love]

Ugh...Well I still have a kidney infection. I went to see my regular doctor Tuesday to recheck and get this they lost my urine. I did not know until Friday when I called to find out what was going on. I had too full of a weekend to go to urgent care to get it all checked out. Which I had to really push myself to get through. I am really sure I still have an infection. My kidneys still hurt and I was retaining water over the weekend. So tomorrow I go back and hopefully they will get it right this time. Other than that my oldest son has strep throat which I get super easy. I have had a sore throat for awhile now but did not think much of it. So gotta get that checked tomorrow too.

On top of all that I got too much sun today when I went fishing with my boyfriend So obviously I am gonna pay for all of it at once. My stress load has also suddenly stacked up too high If only I could work life would be a bit simpler. But that would all take far too long to explain.

On the plus side I am recovering from surgery pretty well. I could almost swear I have already started to feel better. That might just be cause its easier to breathe without my huge thymus. And I think a coincidence, you know how the MG likes to play games of hide and seek. Well mine does every now and then.

I hope everyone is well or getting better Take care everyone!!!

Originally Posted by cricket001

How about we try this? Maybe everyone can check in and let us know what's going on with you...using this thread.

[ConnieS]

Yay! I'm going to see my neuro tmr and I've prepared a list of qns which I've learnt from all of u, to ask him tmr.

Am feeling extremely tired now after a conversation with my friend, its the mouth thing again. Do anyof you feel that your energy is being zapped from u with every task you do? My eyes keep watering, look as if I've not slept for days. Haha.. But today's a great day nevertheless!

Feel like my brain's not working now, am not processing properly, so pardon me if i'm not responding correctly to your posts..

Can't wait to hear from how everyone's doing. Am gonna go rest in bed now.. Can't take it animoreeee.... Lol. Check in tmr again!

[maryec]

Connie, Talking is a big drainer on me also, I have to excuse my self after a while, when I get calls from my talker friends, or mom. They just wear me out, my speach & energy still goes after a awhile. I know they get dissappointed, but they keep calling so they must understand !! LOL.........
Mary

[whirlwind123]

Hi everyone.,
I have finally tapered off the prednisone., so I was feeling a little tired from coming off of it, but I am feeling so much better without the side effects of the prednisone. My lymph nodes are a little swollen but I know they will go down eventually. We are in the process of getting an above ground swimming pool., with my husbands health problems., it will be good exercise for him he loves to swim. I am not a swimmer but I like to splash around. So it should be relaxing. I know I have to watch the heat and sun. So, I am actually feeling pretty good, when I am tired I rest., the vision is a little blurred gets really doubled at night, in the evening., but I feel very fortunate, especially after I read what all of you are going thru., right now it seems my symptoms are mild. Still waiting to get into the good neuro.,and I am not going back to the bad neuro, but my GP is taking good care of me. We are supposed to have a nice week here in Ohio., so I am hoping so, I feel so much better when it is clear and sunny out., we have some beautiful scenery from our back so it is nice to just sit and look out and relax. So that is what is going on with me.

[maryec]

Whirlwind, great to hear from you, I am glad things are going ok for you, I hope they stay that way, so you can get set up with the new Neuro.
The pool will be fun to have, I love getting new stuff !!!! LOL.....
Mary

[Pat 110]

[QUOTE=erinhermes;511963]Hi Pat!

Thank you for your kind words! I really appreciate them! Just feeling sorry fo myself today - hate that feeling! Should be doing something "useful" with my time - just don't have the energy!

If I don't feel better by tomorrow, I'm gonna call my neuro and see if I can have my IV IG bumped up to next week! I love that man!

How are you feeling?

Big hugs!
Erin




Hey Erin,

I've just logged on so I haven't read any updates yet. I hope you're having a better day today. We all feel sorry for ourselves once in awhile and then it passes. I've had many of those days myself. I'm feeling good today, thanks for asking. My leggs hurt from walking the treadmill for so long at the cardiologists yesterday, but not too bad. I can't blame it on the MG, I'm just really out of shape...then again maybe I wouldn't be so out of shape it wasn't for the MG! hahaha Take care.

Hugs to you too!
Pat

[Maxwell'sMom]

I've been Over-whelmed to say the least. For the past 9 weeks now, I've had at the very least one appointment per week. But for the most part, it's more than one. One usually kills me, but like last week, I had two doctors appointment, and then on thursday a Kidney biopsy.

Tomorrow, I have an Iron Infusion (1 1/2 hours for infusion) And then I have a doctors appointment with my neuro afterwards. Iron infusions can make a person feel like they have the flue for a day or so. Not a good feeling.

I'm not seeing an end to all the medical stuff right now. In a couple weeks, I have to have another exercise stress echo ( a specail echo done to check pulmonary pressures) I dread this one, it knocks me right off my feet for days on end.

And in the mist of Kidney testings, infusions, and regular appointments, I have to have a root canal, gums scraped..thank you prednisone for that one. I just can't seem to get a head of it all. Too much! Just too much.

So, I guess, I'm tired. Really tired, and don't have much energy right now. Every time I refill, I have to drain it out.

thanks for listening
Love Lizzie

[Pat 110]

Originally Posted by Maxwell'sMom

I've been Over-whelmed to say the least. For the past 9 weeks now, I've had at the very least one appointment per week. But for the most part, it's more than one. One usually kills me, but like last week, I had two doctors appointment, and then on thursday a Kidney biopsy.

Tomorrow, I have an Iron Infusion (1 1/2 hours for infusion) And then I have a doctors appointment with my neuro afterwards. Iron infusions can make a person feel like they have the flue for a day or so. Not a good feeling.

I'm not seeing an end to all the medical stuff right now. In a couple weeks, I have to have another exercise stress echo ( a specail echo done to check pulmonary pressures) I dread this one, it knocks me right off my feet for days on end.

And in the mist of Kidney testings, infusions, and regular appointments, I have to have a root canal, gums scraped..thank you prednisone for that one. I just can't seem to get a head of it all. Too much! Just too much.

So, I guess, I'm tired. Really tired, and don't have much energy right now. Every time I refill, I have to drain it out.

thanks for listening
Love Lizzie

Hi Lizzie,

Wow! I am so sorry you have to deal with sooo much stuff all at the same time. You must be exhausted. Try to rest as much as you can. You know we're all pulling for you and I'll keep you in my prayers. Hang in there!

Thanks for sharing,
Pat

[Maxwell'sMom]

Thank you Pat, I sure appreciate those prayers.

Love Lizzie