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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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05-18-2009, 10:18 AM | #1 | |||
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My sons 30th birthday was Sat., he lives in AZ though, I got my hair cut short, all the highlights are gone now. Sun, hubby brought me to the new Ikea, just built here in FL., it ended up being to much for me to do, & am stove up today. Well the old saying goes, If your gonna play you , you have to pay, & pay I am !!! Neuro's office dropped the ball, on setting up my IV pred. treatment, I am seeing him wed. the 20th, & will bust them though. I used to stay on them , & had to deal with there attitudes when I called, I'm not doing there job for them anymore, & will just tell the Neuro, I never got the treatment, let him deal with them. Still eating as much as I can, to try & keep from loosing wieght, I think it is muscle loss though, as I have fat on me. Which would go along with the neuropathy, & myopathy found, also the trouble with my malabsorbtion.
Great Idea for this thread, Stephanie !!! Mary |
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05-18-2009, 10:47 AM | #2 | ||
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Sorry to hear they messed up your treatment. I know what you mean about the attitudes when you call an office. Not easy to deal with when you're not feeling good. Good luck with the eating...I have the opposite problem. (: Feel better. Pat |
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