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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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I've been Over-whelmed to say the least. For the past 9 weeks now, I've had at the very least one appointment per week. But for the most part, it's more than one. One usually kills me, but like last week, I had two doctors appointment, and then on thursday a Kidney biopsy.
Tomorrow, I have an Iron Infusion (1 1/2 hours for infusion) And then I have a doctors appointment with my neuro afterwards. Iron infusions can make a person feel like they have the flue for a day or so. Not a good feeling. I'm not seeing an end to all the medical stuff right now. In a couple weeks, I have to have another exercise stress echo ( a specail echo done to check pulmonary pressures) I dread this one, it knocks me right off my feet for days on end. And in the mist of Kidney testings, infusions, and regular appointments, I have to have a root canal, gums scraped..thank you prednisone for that one. I just can't seem to get a head of it all. Too much! Just too much. So, I guess, I'm tired. Really tired, and don't have much energy right now. Every time I refill, I have to drain it out. ![]() thanks for listening Love Lizzie |
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#2 | ||
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Wow! I am so sorry you have to deal with sooo much stuff all at the same time. You must be exhausted. Try to rest as much as you can. You know we're all pulling for you and I'll keep you in my prayers. Hang in there! Thanks for sharing, Pat |
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#3 | |||
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Thank you Pat, I sure appreciate those prayers.
![]() Love Lizzie |
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#5 | |||
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Senior Member
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Hello all! Saw my oral surgeon today, went shopping for my hubby AND made dinner! It was a GREAT day! Yesterday I was unable to get off the sofa and slept 16 hours, but today has been awesome!
I hope all of you are doing great! Big hugs! Erin ![]()
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Erin . |
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#6 | ||
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Hugs, Pat |
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#7 | ||
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Junior Member
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Connie, where are you in the sunny south?..are you going to find another neuro after firing this one? You need to have someone on board who really cares enough to help you out that's for sure....good luck & let us know if you find one.....
Dottie |
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#8 | ||
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Hey dear, how are u feeling today? Sorry to hear about all that you're going through, here's a big
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