Hi Dottie and Ally,

I sure you hope you get some answers soon. I can only imagine how frustrated you both must be. Hang in there, we're all pulling for you! :)

Take care,
Pat

I had a MusK lab drawn on the 7th of May....and the results are still pending...this lab was sent to mayo...how long does it take??:eek:

Stephanie , I think that one takes awhile to get back, I can't really remember, maybe two weeks? I know way to long to wait ! I hope you get some good news !
Mary

HI Stephanie!
 

Have I messed up my Musk test results?
Prior to having blood drawn for the test, I called the lab & asked if I should go off mestinon since I was concerned continued usage might create a false negative. They told me to continue taking it, that there was no need to go off any medication including mestinon.

I'm due to get the results in four days or so and am wondering if I was right to listen to them (given the amount of swirling misinformation about MG I've already encountered).

Have I messed up my Musk test results?

To the best of my knowledge, mestinon has no significant effect on the immune system and therefore should not change results of serological tests.

Take into account that the commercially available tests may not detect all antibodies (either in AhcR or MuSK MG).

Cell-based assays which are much more sensitive are not being used routinely. So, some patients may have false negative results, because of the relatively low sensitivity of the commercial tests.

http://www.ncbi.nlm.nih.gov/pubmed/23252902

You have relieved my soul, thank you!

Though there is this.

http://www.ncbi.nlm.nih.gov/pubmed/2540433

It's a very small study but I've seen a couple of others that say Mestinon suppresses the humoral immune system (that makes antibodies).

Seishin, Take a deep breath! ;) It'll be okay.

:hug:
Annie

Ah well... (sigh)....
I'll balance the scales in my hope that mestinon continuation didn't affect test results and my concern that I just blew $200 plus change. The gasket will remain in check for now.

:thud: