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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Member
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Hi everyone,
I've had a bit of success from the MGA and secured 4 of the DVDs that were shown at the conference. They were reluctant to give me more as they use them to raise funds within the UK. Anyways, if you would like one of my prescious 4 copies please message me and we can arrange delivery (I don't mind paying for the postage as long as you don't mind snail mail)! A few people have already indicated they would be interested so I guess first come, first serve is the fairest way to distribute them? Talk to you soon! Hope you are all well, ~Kathy |
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#2 | ||
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Member
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You are so sweet to do that Kathy! I don't need one, but wanted to commend you on your generosity. Perhaps someone has a computer that can copy the CD? Then there would be more to distribute. I would volunteer, but my confuser is having some problems and I'd hate to ruin one of them.
Any techies out there willing? Thanks again, Kathy. You're wonderful!
__________________
Becky |
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#3 | |||
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Quote:
Simon |
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#4 | ||
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Member
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Hi Kathy,
Just a note to say thank you for your generous offer. I don't need one, but I'm sure others will be interested in getting a copy. Take care, Pat |
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#5 | |||
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Junior Member
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Quote:
I would be very interested in receiving any and all DVDs. I'm having a hard time getting my family, friends and boss to understand this disease. Maybe the DVD would help. Thank you for the offer. You can confirm at my e-mail: *PM for contact info* and I will send you my address. Martha Last edited by Jomar; 05-28-2009 at 03:03 PM. Reason: edited for privacy |
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#6 | |||
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Member
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Kathy,
If you happen to have an extra one by now ![]() I would love to have a copy! Especially, since I don't understand this disease! Quote:
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Cricket . |
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