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Old 06-01-2009, 10:56 AM #11
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Erin,
I hope you get feeling better soon! May seems to have been a rough month for everyone so now that it is June maybe we will have a great month!
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Old 06-01-2009, 12:29 PM #12
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Erin, glad you are feeling better before heading to have your treatment, happy you are getting a well diserved boost !
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Old 06-01-2009, 03:56 PM #13
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Smile Hi Joanmarie!
You know, you are right! Maybe it is the heat! June should be fabulous!

How are you feeling today? Are you feeling better? How is your family?

Big, big hugs!
Erin




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Erin,
I hope you get feeling better soon! May seems to have been a rough month for everyone so now that it is June maybe we will have a great month!
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Old 06-01-2009, 03:59 PM #14
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You know, you are right! Maybe it is the heat! June should be fabulous!

How are you feeling today? Are you feeling better? How is your family?

Big, big hugs!
Erin


Erin,
You are you today? Better I would assume since you got your "juice"!
Simon
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Old 06-01-2009, 04:46 PM #15
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Smile HI Simon!
Hi Simon! I am getting my "juice" as I type this - gooooooooooooood stuff!

Gonna be a great week!
Erin



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Erin,
You are you today? Better I would assume since you got your "juice"!
Simon
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Old 06-01-2009, 05:37 PM #16
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Hi Simon! I am getting my "juice" as I type this - gooooooooooooood stuff!

Gonna be a great week!
Erin

You get yours this week and I get mine next. WooHoo!!
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Old 06-02-2009, 10:02 PM #17
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Erin, I'm feeling a little better, thanks for asking. School is out, so I have a couple of months to relax. I had a B12 shot today. I still have a couple of decisions to make, but I am so unsure of what to do. My neuro says I need to start taking Imuran or Cellcept. He also wants me to do a plasma exchange. I wanted to wait and see what happens when I am not teaching, so I am meeting with him next the first week of July.



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THank you so much for your response!

I am having my monthly IV IG this week. My neuro isn't comfortable reducing my pred until I get that taken care of, b/c I was doing so well b/4 @ 15 of pred and 1000 of cellcept and then had another crisis. Apparently my MG is kind of a pain in the backside b/c I will be doing GREAT and then crash BIGTIME!

How are you? Are you feeling better?

Can't wait to hear from you!
Erin
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Old 06-03-2009, 10:50 PM #18
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Smile Hi Tbarney!
Hello! I am so glad to hear you are feeling better! What are the B-12 shots for?

MG is scary. The whole "not knowing" thing is the hardest part. I am so type A that I like a routine - that has been out he window for 1 year now - just drives me nuts?!?

Both Cellcept and Imuran are great! I am on Imuran right now - Cellcept just didn't do enough for me. There are risks involved with any medicine, but they are minimal. Read the back of a tylenol bottle sometimes - but the REWARDS (in my case) outweighed the risk. I was so desperate for remission that I would have done anything - gone anywhere - to get there. I will. It's going to take a while, but I will. God willing! He's seen me through some really rough patches so far!

I know how scared you are. I was terrified all the time @ first. After my thymus was removed I was still kind of in shock. I stayed on my sofa, sleeping sitting up due to the pain. I refused to go in my room - that is where my last crisis happened. It took months to get over the fear. Then I was MAD! Very, very bitter.....that gave way to acceptance. I simply gave my fear and anger to God. I feel so much better now. There are still days when I wake up and think it is all a dream, but am so thankful to be here!

Whatever procedure you choose, you will feel better! Modern advances have made our lives so much more bearable. Back in the 60's, MG was kind of a death sentence, but now our life expectancy is that of any average person.

I'd love to hear more from you when you hae some time. My email is erinhermes@hotmail.com if you want to reach me that way!

Can't wait to hear from you!
Erin




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Erin, I'm feeling a little better, thanks for asking. School is out, so I have a couple of months to relax. I had a B12 shot today. I still have a couple of decisions to make, but I am so unsure of what to do. My neuro says I need to start taking Imuran or Cellcept. He also wants me to do a plasma exchange. I wanted to wait and see what happens when I am not teaching, so I am meeting with him next the first week of July.
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Old 06-03-2009, 10:52 PM #19
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Smile Forgot something
What grade do you work with?
Erin


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Originally Posted by Tbarney View Post
Erin, I'm feeling a little better, thanks for asking. School is out, so I have a couple of months to relax. I had a B12 shot today. I still have a couple of decisions to make, but I am so unsure of what to do. My neuro says I need to start taking Imuran or Cellcept. He also wants me to do a plasma exchange. I wanted to wait and see what happens when I am not teaching, so I am meeting with him next the first week of July.
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Old 06-05-2009, 12:59 AM #20
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Erin, the B12 shots are for fatigue. They are supposed to boost my energy. My blood work shows I have a B12 deficiency.

I teach high school math. I have freshmen and seniors.
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