Hello all! What a day! I feel just awful - weak and have a migraine from hades........
I know I overdid it yesterday, but I had to run errands - who knew it would take 9+ hours?!? Man, it was brutal!
My hubby was so sweet and made me breakfast in bed - it was fabulous! I truly do not know what I'd do without him. My wicked bad sinus infection is back, coupled with my back and a migraine, so I am in a terrible mood........
I cannot WAIT for next week - Methodist hospital, here I come! I am sooooo ready for my go-go juice!
MY son is home as well.....he was with my sis for weeks - I am so glad he is home! The house is way too quiet without him............my baby!

I hope this post finds all of you strong and happy!

Tomorrow will be better - it has to!

Erin

Erin,
Hang in there! Tomorrow will be better! I know the feeling about the "juice".
I get mine in a week and am ready! Take care and hope tomorrow is stronger for you without the headaches and other pains! Thank God for great spouses!
Simon

HEy Simon! Today has already been better! YAY! I was even able to get some stuff done and gear up for my stay @ the hosp - for some reason my neuro won't allow me to have it done @ home.........

How are YOU feeling today?

Big hugs!
ERin

Erin,
Glad to hear you are better. I'm having an ok day! Just being lazy.....watching movies with my wife and hangin in there! I am dreading work tomorrow...I took vacation time all last week. Oh well, life goes on!
Simon

AAAArrrrggghhhh! You just can't catch a break! Don't you hate it when you're getting a lot done and having that wonderful, accomplished feeling but you know you are going to pay? I'm sorry to hear today was so rough for you. And a migraine. Ouch. I get those too. It's the only time I'll allow myself to drink a coke - which really helps me.

Thank goodness for your wonderful hubby! Except for the fact that he's a one and only original who loves you best, I would say clone him instead of goats. We need the world full of wonderful husbands. I had a wonderful one too and I know there's nothing better in life. Hey, they should clone your neurologist though. One wonderful neurologist for each of us!

Try to hang in there. Tomorrow's got to be a better day.

Ally

Erin, maybe it is on another post, but I don't see it. What procedure are you having done this week?

THank you so much for your response!

I am having my monthly IV IG this week. My neuro isn't comfortable reducing my pred until I get that taken care of, b/c I was doing so well b/4 @ 15 of pred and 1000 of cellcept and then had another crisis. Apparently my MG is kind of a pain in the backside b/c I will be doing GREAT and then crash BIGTIME!

How are you? Are you feeling better?

Can't wait to hear from you!
Erin

Erin, I'm feeling a little better, thanks for asking. School is out, so I have a couple of months to relax. I had a B12 shot today. I still have a couple of decisions to make, but I am so unsure of what to do. My neuro says I need to start taking Imuran or Cellcept. He also wants me to do a plasma exchange. I wanted to wait and see what happens when I am not teaching, so I am meeting with him next the first week of July.

Hello! I am so glad to hear you are feeling better! What are the B-12 shots for?

MG is scary. The whole "not knowing" thing is the hardest part. I am so type A that I like a routine - that has been out he window for 1 year now - just drives me nuts?!?

Both Cellcept and Imuran are great! I am on Imuran right now - Cellcept just didn't do enough for me. There are risks involved with any medicine, but they are minimal. Read the back of a tylenol bottle sometimes - but the REWARDS (in my case) outweighed the risk. I was so desperate for remission that I would have done anything - gone anywhere - to get there. I will. It's going to take a while, but I will. God willing! He's seen me through some really rough patches so far!

I know how scared you are. I was terrified all the time @ first. After my thymus was removed I was still kind of in shock. I stayed on my sofa, sleeping sitting up due to the pain. I refused to go in my room - that is where my last crisis happened. It took months to get over the fear. Then I was MAD! Very, very bitter.....that gave way to acceptance. I simply gave my fear and anger to God. I feel so much better now. There are still days when I wake up and think it is all a dream, but am so thankful to be here!

Whatever procedure you choose, you will feel better! Modern advances have made our lives so much more bearable. Back in the 60's, MG was kind of a death sentence, but now our life expectancy is that of any average person.

I'd love to hear more from you when you hae some time. My email is erinhermes@hotmail.com if you want to reach me that way!

Can't wait to hear from you!
Erin

What grade do you work with?
Erin