Hello all! What a day! I feel just awful - weak and have a migraine from hades........
I know I overdid it yesterday, but I had to run errands - who knew it would take 9+ hours?!? Man, it was brutal!
My hubby was so sweet and made me breakfast in bed - it was fabulous! I truly do not know what I'd do without him. My wicked bad sinus infection is back, coupled with my back and a migraine, so I am in a terrible mood........
I cannot WAIT for next week - Methodist hospital, here I come! I am sooooo ready for my go-go juice!
MY son is home as well.....he was with my sis for weeks - I am so glad he is home! The house is way too quiet without him............my baby!

I hope this post finds all of you strong and happy!

Tomorrow will be better - it has to!

Erin

Erin,
Hang in there! Tomorrow will be better! I know the feeling about the "juice".
I get mine in a week and am ready! Take care and hope tomorrow is stronger for you without the headaches and other pains! Thank God for great spouses!
Simon

AAAArrrrggghhhh! You just can't catch a break! Don't you hate it when you're getting a lot done and having that wonderful, accomplished feeling but you know you are going to pay? I'm sorry to hear today was so rough for you. And a migraine. Ouch. I get those too. It's the only time I'll allow myself to drink a coke - which really helps me.

Thank goodness for your wonderful hubby! Except for the fact that he's a one and only original who loves you best, I would say clone him instead of goats. We need the world full of wonderful husbands. I had a wonderful one too and I know there's nothing better in life. Hey, they should clone your neurologist though. One wonderful neurologist for each of us!

Try to hang in there. Tomorrow's got to be a better day.

Ally

Erin, maybe it is on another post, but I don't see it. What procedure are you having done this week?

HEy Simon! Today has already been better! YAY! I was even able to get some stuff done and gear up for my stay @ the hosp - for some reason my neuro won't allow me to have it done @ home.........

How are YOU feeling today?

Big hugs!
ERin

HEy girl! How are YOU today?You were sooooo right when you said that the lovely feeling of getting stuff done means we are gonna pay BIG the next day!

Today has been much better though! I was able to get some shopping done and even get my spray on "tan" to tone down my "wookie" arm hair! YAY!

Stupid MG just waxes and wanes so much! I was up to 5:00 this morning with a killer migraine, but finally gave in and took a pain killer so I could finally get some rest!

I know I whine a lot but it really hasn't been that bad. It's just that I can't seem to get rid of all of my infections cuz' of the pred and imuran. On the positive side, I go down to 20 mgs this week - YAY! I am so pumped! Ready to look like a woman again.

We are so lucky to have wonderful spouses! They make all the difference in the world! I should have him and my neuro cloned! That way everyone would be taken care of......the scary thing is that men usually leave when their wives get sick - @ least that is what the nurses told me @ the hosp....I can't even imagine life without Mike. We are like an old married couple - we are so set in our ways already (@ 35 and 46) !!!!!!

Hope this post finds you strong and happy!

Big hugs!
Erin

THank you so much for your response!

I am having my monthly IV IG this week. My neuro isn't comfortable reducing my pred until I get that taken care of, b/c I was doing so well b/4 @ 15 of pred and 1000 of cellcept and then had another crisis. Apparently my MG is kind of a pain in the backside b/c I will be doing GREAT and then crash BIGTIME!

How are you? Are you feeling better?

Can't wait to hear from you!
Erin

Erin,
Glad to hear you are better. I'm having an ok day! Just being lazy.....watching movies with my wife and hangin in there! I am dreading work tomorrow...I took vacation time all last week. Oh well, life goes on!
Simon

hey erin-good luck with it all this week,will be thinking of you ,your veins and the week of "rest" as nonsick folks think it is! ha-if they ever knew how much it takes to get picc lines in ,woory about infections from it,rely on the nursing staff for all your meds,which are on their time schedule! i've been hosp. 17 times from jan2001 to march 2007 17 times and about 12 were for a month and a picc line each time. i've only had 1 staph infection but in spite of bloodthinners 3-4 clots in that arm. this is for something totally un related to mg!!good luck!

Hi Erin,

sorry you've had migranes, they suck!! I take imigran, and wow do they work for me, I use to end up in hospital.

YAY your next ivig is due, I wish I could go and have a dose today, I'm feeling totally crappy, my fingers arn't working, I'm shuffling and just feel plain icky. My darling Mum just dropped by and is comming back shortly to take me to do some food shopping, as the fridge is bare from being away all week. So I'm off to get some fruit and vegies. Don't know what I would do without her.

Hope all goes well with your ivig, will be thinking of you and sending positive thoughts that all goes smoothly.
take care
kate