NeuroTalk Support Groups - Just got home.....

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- - Just got home..... (https://www.neurotalk.org/myasthenia-gravis/88339-home.html)

Hey hon! My"baby" is 17, but he still loves it when I cook!:D Boys are such a blessing! I love wearing his big t shirts around the house - can you tell I love my baby? I drive him crazy, but it's the whole mother love thing.......:D

We do have the "magic touch" huh? :D No greater feeling in the world!

Today has been much better - much better! I know it sounds crazy, but I can already "feel" the effects of my liquid gold!

How are YOU today? Are you feeling OK?

Big, big hugs!
Erin

Quote:

Originally Posted by xmas 25 (Post 518062)

glad to hear one day is done! how old is your son? it makes me laugh because my son is 30 and ate pband j everyday for years!! if he stopped by he'd call first to see if io ahd fresh bread,even when he moved out at 21. now he's married but when he is really sick-he calls good old mom and asks if i could please bring him 2-3 pb&js. and a few extra for later in the day. i have the magic touch!!:rolleyes:

Hey there! Still feeling awesome? Have you read Brennan's posts? He is doing so well! It gives me real HOPE that 09 is going to be a great year!:D

I went in and had my spray on tan......I must admit that I do look healthier - as well as thinner *happy dance* - still have to get the whole thing down though b/c I have some weird blotches on my skin......lol!

Are getting to swim @ all? How are YOU doing?

Big, big hugs!
Erin:D

Quote:

Originally Posted by Scots Kat (Post 518118)

Hope your "juice" kicks in quick and you can enjoy it!! Take care of yourself!
~Kathy

Hello! How are you today? Are you feeling stonger?

I used to be able to call ahead, but some doofus ruined it for the rest of us......never came in for their IV IG - and you know how expensive that stuff is.....now we actually have to BE here in order for the staff to call the pharmacy......:rolleyes:

Today has been much, much better! I brought my controlled release xanax (just in case)LOL!

Can't wait to hear from you!
Erin:hug:

Quote:

Originally Posted by leaningin (Post 518135)

When I was scheduled for IVIG at the Infusion center, they let me call the pharmacy at 5 a.m. and confirm that I was coming in. They started mixing the IVIG then so when I arrived at 8 a.m. it was ready. You might see if they would do the same for you.

Mel - you are so sweet!

Mel, you are so sweet!I can assure you though that they want me out of here ASAP! I love my nurses, but miss being home with Devon! He was too cute last night, calling to see when I'd get home to make him dinner........I just love that boy! This has been so hard on him. He still isn't used to seeing me weak - it really scares him. If I sleep late, he starts knocking on my bedroom door - just in case! I am so blessed to have such an amazing support group!

How are you? Are you feeling stronger? Sassier? :D

My dr has the nurses running my IV IG at a snail's pace - 140 mL tops - to prevent kidney damage - it has me going out of my mind! Before I was in and out in record time - 2-3 hours.....what used to take a few hours has turned into an all day marathon!:D

I have missed you my friend! Thank you for responding!
Big hugs!
Erin:D

Quote:

Originally Posted by rezmommy (Post 518162)

Erin ~ I think that they just really like you at the hospital and are just looking for ways to have you hang around a bit longer. Your charming wit is the reason you were at the hospital for so darn long! Take care my friend!