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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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06-02-2009, 04:14 PM | #11 | |||
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Hey hon! My"baby" is 17, but he still loves it when I cook! Boys are such a blessing! I love wearing his big t shirts around the house - can you tell I love my baby? I drive him crazy, but it's the whole mother love thing.......
We do have the "magic touch" huh? No greater feeling in the world! Today has been much better - much better! I know it sounds crazy, but I can already "feel" the effects of my liquid gold! How are YOU today? Are you feeling OK? Big, big hugs! Erin Quote:
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06-02-2009, 04:20 PM | #12 | |||
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Hey there! Still feeling awesome? Have you read Brennan's posts? He is doing so well! It gives me real HOPE that 09 is going to be a great year!
I went in and had my spray on tan......I must admit that I do look healthier - as well as thinner *happy dance* - still have to get the whole thing down though b/c I have some weird blotches on my skin......lol! Are getting to swim @ all? How are YOU doing? Big, big hugs! Erin
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06-02-2009, 04:25 PM | #13 | |||
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Hello! How are you today? Are you feeling stonger?
I used to be able to call ahead, but some doofus ruined it for the rest of us......never came in for their IV IG - and you know how expensive that stuff is.....now we actually have to BE here in order for the staff to call the pharmacy...... Today has been much, much better! I brought my controlled release xanax (just in case)LOL! Can't wait to hear from you! Erin
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06-02-2009, 04:34 PM | #14 | |||
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Mel, you are so sweet!I can assure you though that they want me out of here ASAP! I love my nurses, but miss being home with Devon! He was too cute last night, calling to see when I'd get home to make him dinner........I just love that boy! This has been so hard on him. He still isn't used to seeing me weak - it really scares him. If I sleep late, he starts knocking on my bedroom door - just in case! I am so blessed to have such an amazing support group!
How are you? Are you feeling stronger? Sassier? My dr has the nurses running my IV IG at a snail's pace - 140 mL tops - to prevent kidney damage - it has me going out of my mind! Before I was in and out in record time - 2-3 hours.....what used to take a few hours has turned into an all day marathon! I have missed you my friend! Thank you for responding! Big hugs! Erin
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