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-   -   Thymectomy booked in for June 25th (https://www.neurotalk.org/myasthenia-gravis/89513-thymectomy-booked-june-25th.html)

mm80 06-14-2009 10:50 PM

Quote:

Originally Posted by momma3love (Post 523382)
I just had my thymectomy as well. April this year. Are you having the transcervical, where they dont break open the sternum? Thats what I had. I hope this is an option for you. Either way I truly wish you luck. I am sure everything will go fine! I have 3 boys, 8, 9 and 11. I had to be in the hospital for 10 days. For plasma and then the surgery and recovery. That was very scary cuz hospital was hour and a half away from home! So I feel for you I truly do.

Hi their thanks for all the best wishes, in reply to your question unfortunately my incision will be a medial/full sternotomy so I am assuming my recovery will be a bit longer then yours, could I ask you how long did it take for u to get back on your feet and pain free? I have a 2.5 yr old and a 3.5 year old but thankfully the hospital is only 15 min away but I still worry for them but I guess that what mums are for to worry hahaha how has you MG been since operation?

Look forward to hearing from you soon, take care

Melissa :o):D

momma3love 06-14-2009 11:18 PM

Honestly I have still been struggling off and on. Most of the time worse than before the surgery, but I did have a couple of really good days. That was about 3 weeks after surgery. The pain was definitely tolerable after 3 weeks. Took to about 6 weeks out for my rib cage to stop hurting. I had plasma before surgery and keep trying to get them to do IVIG since. I think it would really help me feel better. Just in a bad rutt right now. So I guess you could say I am still trying to recover. Well I hope all goes well with you. I am one of the few to have had the transcervical thymectomy. So others would prolly be able to give you a much better timeline. Just remember no lifting after surgery. I know that will be very hard to do with the ages of your lil ones.:) Keep us posted and good luck with everything.:hug:



Quote:

Originally Posted by mm80 (Post 523386)
Hi their thanks for all the best wishes, in reply to your question unfortunately my incision will be a medial/full sternotomy so I am assuming my recovery will be a bit longer then yours, could I ask you how long did it take for u to get back on your feet and pain free? I have a 2.5 yr old and a 3.5 year old but thankfully the hospital is only 15 min away but I still worry for them but I guess that what mums are for to worry hahaha how has you MG been since operation?

Look forward to hearing from you soon, take care

Melissa :o):D


xmas 25 06-15-2009 02:22 PM

just remember to do the things like reading ,games etc that will let you sit with them. hopefully you have some help lined up for the kids and house stuff. i would let the kids help me-even though it wasn't much help but they can fold laundry with you and dust my kids just needed to be mommys helpers so i took advantage while i could a few yrs later those tactics didn't work it was do you need anything mom-if not i'll see you later


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