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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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06-11-2009, 01:56 PM
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I have been pretty fortunate with the mg, mostly double vision., and leg and arm heaviness if I do to much., but as of yesterday., the vision is bad but I am exhausted it is like I can't move., I could just lay down anywhere...so I am resting..........
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06-11-2009, 02:21 PM
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Yes, I do understand that feeling all too well....luckily for me no double vision or bulbar signs, but generalized mg & the exhaustion has been going on a long time...now with the Mestinon, I am better, but still can't walk far or lift anything heavy....hope you get to feeling better Whirlwind....
Dottie |
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06-11-2009, 02:26 PM
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I hate days like that but feel better knowing we all go through it and it does get better. My youngest graduation high school last night and I spent the whole day resting so I could make it through graduation. Like you I suffer double vision and arm, leg weakness or heavyness, we go day by day but always think of the good days you will have and when you feel like this.. rest is best
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06-11-2009, 04:09 PM
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HEy honey! I am sorry you are going through this.....just REST as much as you can and do not overdo it - you DESERVE this time to just rest......it will get better! You are always in my thoughts and prayers!
Love, Erin  Quote:
__________________
Erin . |
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06-11-2009, 06:36 PM
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Hi Nancy,
I've had much the same symptoms as most of you have and was always lead to believe the heaviness and fatigue was not due to the MG. Now thanks to all of you and your posts I realize that is not the case and after 10 years it is such a relief to now know. I've always know that rest is key. If you push yourself to hard, the MG wins everytime. I'm sorry you're having a bad day. Get all the rest you can and need so maybe you'll have a good day tomorrow!  I'll be keeping good thoughts. Take care.Hugs, Pat |
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I am suddenly exhausted...
Hey whirlwind!
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