Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 06-15-2009, 08:28 PM #1
ras1256 ras1256 is offline
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Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
ras1256 ras1256 is offline
Member
 
Join Date: Feb 2009
Location: outside Denver, Colorado
Posts: 366
15 yr Member
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Hi Sue, and welcome. Sorry I'm so late in joining, but I recently was able to return to work (very very close to full time) and I'm trying to conserve energy for that.

You may find as you learn more about MG and look back, that you have had it longer than you thought. Mine started years ago, but MG can go into remission on it's own early on and that's what mine did. I can recall times though that it was flaring and I didn't pay much attention because it wasn't debilitating then. The old school of thought was that it generally progresses for about 20 years, then hits it's peak and levels off. There are periods of spontaneous remission in there, and the symptoms may or may not get progressively worse. That's where the difference comes in. Some people may never progress to a debilitating level and I sure hope you're in that group!

You seem to have a strong awareness of your body, and a wonderful outlook and both these traits will help you alot with MG.

Glad you have joined us! Look forward to learning more about you!
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