Hi Erin and anyone else that wants to join in!

I was reading some old posts- the cricket is on and Im feigning interest to keep the peace!

I read Erin that your face froze, I was wondering if I tell you my symptoms when mine did it if you could tell me if yours was like that? Does that make sense? sorry if it doesn't Im shattered and I should really be in bed doing this not sat on the recliner!

On Monday 1st of June I was doing my usual, pushing myself to the limit cleaning and messing about. It was very hot hottest day of the year so far.

My face felt funny, stiff like it wasn't moving properly. I tried to whistle couldn't make the shape with my mouth, tried to smile made a face that would scare small children! Over the next four hours my face became frozen. The corners of my mouth turned down and I had to talk through gritted teeth. I went to hospital where they did b***er all. After 12 hours it wore off. In those 12 hours all I did was lie still on a bed, no talking, no watching tv or listening to the radio. Did yours do something similar?

Thanks
Rach

Hey hon! Yep, my face slowly "froze" up to the point where I couldn't even kiss my son or hubby. This is serious stuff! What did the dr's say?

My face was frozen for about 3 months b/4 I FINALLY got my dx - of course, it took 3 different episodes where I almost blacked out due to lack of oxygen to finally get dx'ed but oh well!

Do you notice that you wake up having a hard time breathing? What more do the stupid dr's want? I do not flippin understand!

Let me know when you have the time/energy!

Big hugs!
Erin

Hi Erin,

Thanks for your reply. My mum told me this morning you had posted. We were chatting about how many other people on here have struggled to get diagnosed, and how often sfemgs are done in the wrong places. Mine have been done in my arm, which isn't where I am weakest, my legs are the weakest. They have also been done around my eye. They have always shown nothing.

Well what did the Drs say.....absolutely nothing thats when they gave me the BS diagnosis of Cortical Plasticity. So it didn't help.

Im on my way down again at the moment. I know because I follow a pattern, it starts with night sweats, then general weakness. So struggling to move around my house (more than usual ) and struggling to type as my hands dont want to lift up to hit the keys. They are shaking with the effort.

I just pray I get somewhere with Angela Vincent.

Thanks you

Rach

Wow, bless your hearts. Thankfully I have not had that happened but my feet will freeze up and get great pain in them, like a hot poker sticking me. Actually my whole left side is weaker then my right and also "numb-tingly"

Oh and Dr. told me the pain is Fibro Myalgia {sp?} I think that is the new answer for everything.. LOL

I've had the face freeze countless times. Lasting several minutes to a couple of hours. When the right side of my face drooped, it took 6 months to go back to almost normal again. To this day I still don't have my full smile back and my right eye, which was my worst one, still has a slight droop to it that the Dr. says is permanant. Compared to what I did look like when all this was happening, I am very happy and grateful to look this normal again!
Hugs,
Pat

sometime my eyes twitch so much that i know that people cant see it but i cant stand it - i also find that when i take a picture and even if i am smiling it always looks as if i am sad - i find when i sleep or even wear sunglasses in the house so my eyes are not so sensitive it feels a little better

Hi ss822! Have you been dx'ed with MG? It sounds like your face may be freezing up as well! I look @ old pics b/4 my dx - and I always looked upset -even though I was happy! It crept up on me so slowly that I wasn't even able to realize it until I wasn't able to kiss my son or hubby!

Ice packs are great for when your eyes need a break. They help quite a bit!

When you have some time, I'd love to hear more about your MG!

Erin