Hi Erin and anyone else that wants to join in!

I was reading some old posts- the cricket is on and Im feigning interest to keep the peace!

I read Erin that your face froze, I was wondering if I tell you my symptoms when mine did it if you could tell me if yours was like that? Does that make sense? sorry if it doesn't Im shattered and I should really be in bed doing this not sat on the recliner!

On Monday 1st of June I was doing my usual, pushing myself to the limit cleaning and messing about. It was very hot hottest day of the year so far.

My face felt funny, stiff like it wasn't moving properly. I tried to whistle couldn't make the shape with my mouth, tried to smile made a face that would scare small children! Over the next four hours my face became frozen. The corners of my mouth turned down and I had to talk through gritted teeth. I went to hospital where they did b***er all. After 12 hours it wore off. In those 12 hours all I did was lie still on a bed, no talking, no watching tv or listening to the radio. Did yours do something similar?

Thanks
Rach

Hey hon! Yep, my face slowly "froze" up to the point where I couldn't even kiss my son or hubby. This is serious stuff! What did the dr's say?

My face was frozen for about 3 months b/4 I FINALLY got my dx - of course, it took 3 different episodes where I almost blacked out due to lack of oxygen to finally get dx'ed but oh well!

Do you notice that you wake up having a hard time breathing? What more do the stupid dr's want? I do not flippin understand!

Let me know when you have the time/energy!

Big hugs!
Erin

Hi Erin,

Thanks for your reply. My mum told me this morning you had posted. We were chatting about how many other people on here have struggled to get diagnosed, and how often sfemgs are done in the wrong places. Mine have been done in my arm, which isn't where I am weakest, my legs are the weakest. They have also been done around my eye. They have always shown nothing.

Well what did the Drs say.....absolutely nothing thats when they gave me the BS diagnosis of Cortical Plasticity. So it didn't help.

Im on my way down again at the moment. I know because I follow a pattern, it starts with night sweats, then general weakness. So struggling to move around my house (more than usual ) and struggling to type as my hands dont want to lift up to hit the keys. They are shaking with the effort.

I just pray I get somewhere with Angela Vincent.

Thanks you

Rach

Wow, bless your hearts. Thankfully I have not had that happened but my feet will freeze up and get great pain in them, like a hot poker sticking me. Actually my whole left side is weaker then my right and also "numb-tingly"

Oh and Dr. told me the pain is Fibro Myalgia {sp?} I think that is the new answer for everything.. LOL

I've had the face freeze countless times. Lasting several minutes to a couple of hours. When the right side of my face drooped, it took 6 months to go back to almost normal again. To this day I still don't have my full smile back and my right eye, which was my worst one, still has a slight droop to it that the Dr. says is permanant. Compared to what I did look like when all this was happening, I am very happy and grateful to look this normal again!
Hugs,
Pat

Hi guys,
I too have had "frozen face" on occasion. Mine always only lasted for a few minutes (thankfully). It used to happen regularly when I was teaching and talking a lot (as I regularly do). I used to make a fish face (suck in my cheeks and chew them a bit to get feeling back) so often that my kids started making the same face back to me. It was pretty cute actually. I'm lucky that I never had any noticible drooping other than in my eyes.

Hope you have a great day!
~Kathy

Thanks guys ! You are so supportive here I never feel like a numpty when I ask a weird question!

Hey Rach,

I also have the frozen face. On my last day of work, before I asked for time off because I could barely be understood, I was talking like the God father, marble mouth and unable to move my face. It was really weird!

It definately got worse the last couple of months. One time, I couldn't move anything for about 30-minutes. I couldn't even close my eyes. This also happens often if I experience a strong emotion, like laughter...lol...Imagine making a funny quip, and the person hearing you suddenly looks like, at first, you've just punched them, and right after, they've just had an injection of botox! lol...Anything extremely funny to me causes me to appear as if my face is melting...lol...I don't mean to make light, but it's good to know that it DOES get better, as so many others have said....That's the brightside to this--As hard as it is at first, there IS treatment....Thank God.

I remember just before I was diagnosed, I had just finished clipping a dog, and was talking to its owner. All of a sudden the right side of my body stopped working, but more noticably my face. All I could think of was, aaahhhh I'm having a stroke (Dad had had one about 2 weeks earlier) I was terrified, but can now look back and realise what was going on.

Now I know I'm having a bad phase if my fingers don't want to type/write chop food etc, and I know its time to sit and relax for a while.