Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-28-2009, 08:05 PM #12
justdeb justdeb is offline
In Remembrance
 
Join Date: Jul 2008
Posts: 63
15 yr Member
justdeb justdeb is offline
In Remembrance
 
Join Date: Jul 2008
Posts: 63
15 yr Member
Default

Hi, is good to see a family member who is trying to help instead of malign the person with MG. So many folks have just the opposite, sadly.
Being informed is wonderful.
As to the medications that are commonly used, there is a website MGFA that will tell you all about the mainstays for treating mg. Why each one is used or not used. The possible good vs bad effects of each.
As to what treatments each of us gets, it is very much individualized. Some get by with mestinon alone. Some get by with a combo. And then other hard headed MGers, such as myself like to have a nice salad bar type variety of medications/treatments to get by. sigh. LOL I have been on pred for about 5 years now. 60 mg a day. And have all the bad side effects to show for it. We have tried numerous times to wean off of it, but my body is very resitstant to giving it up. Currently have been at 50mg for a bit over a month now. ACtually doing OK. Of course we increased the IVIG from biweekly to weekly to help with the weaning.
So again, keep investigating things. Learn as much as you can so you can help educate your family and sis in the MG journey that is just beginning!
justdeb is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Question about 6 question cdr form Bobby17 Social Security Disability 18 07-14-2013 11:36 AM
Just a question Army Wife Medications & Treatments 2 03-11-2009 03:23 AM
Vit B12 question! Megan Peripheral Neuropathy 8 12-16-2007 07:25 PM
Question watsonsh Reflex Sympathetic Dystrophy (RSD and CRPS) 2 02-21-2007 09:01 PM
A question or two Lara ALS 3 02-02-2007 03:04 PM


All times are GMT -5. The time now is 01:00 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.