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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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06-25-2009, 03:39 PM | #1 | ||
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Junior Member
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How does heat affect MG symptoms?
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06-25-2009, 04:57 PM | #2 | ||
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Grand Magnate
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Hi. I hope I don't make this too complicated.
In MG, antibodies attack the neuromuscular junction, destroying muscle receptors. It's the place where the nerve meets the muscle. Acetylcholine, kind of like our bodies "muscle gas," then doesn't have as many muscle receptors to go into. When acetylcholine is done "feeding" our muscles with energy, there is an enzyme called acetylcholinesterase that comes in and "mops up" the acetylcholine. Mestinon, one of the drugs used for MG, helps "fend off" the enzyme and keeps more acetylcholine in our neuromuscular junction longer, so we can use more of it. When your body gets hot from a fever from an infection or hot weather or anything else that heats the body up, that little enzyme gets much greater in number. That also happens when we get too cold. The enzyme "eats up" even more acetylcholine. Then we have even less muscle gas and our muscles get weaker. People without MG have this happen too but they don't notice it as much. They may get "tired" after being out in the heat for too long. Just stay the heck out of the heat AND humidity! Oh, the humidity makes it worse because when it's humid, your body can't sweat. Sweating cools off the body. So if you can't cool down, you can get even worse. Annie |
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06-25-2009, 05:11 PM | #3 | ||
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Member
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The heat and humidity are hitting me hard. My MG has not been bothering me too bad since I have been on summer vacation from teaching. For most of June our high temps have been in the 60's. Well that changed!!!! Temps in 90s, heat indexs in the 100s. I have been crumbling. I am beat. I umpire at youth softball games twice a week, 3 hours a night. Just standing in the field knocks me out, it is so HOT!!!! I come home, shower, and crash.
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06-25-2009, 05:20 PM | #4 | ||
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Grand Magnate
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http://www.qvc.com/qic/qvcapp.aspx/v...-Cooling-Wraps
Tbarney, These are cooling bands to wear around your head or neck. No, I'm not affilated with QVC! A lot of companies also make cooling vests that you can wear under shirts. You need to do everything you can to stay cool outside!!! Heat is the one thing that will tank MG really quickly. Giving up what you like to do is usually not an option. So try to stay as cool as you can. |
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06-25-2009, 06:59 PM | #5 | |||
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Senior Member
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HEllo all! I've been stuk inside my home since Tuesday since it has been so flippin hot here!
The heat makes my face SWELL and I'm am worn out in a matter of minutes - and I live in and LOVE Texas but wonder where Mike and I are going to retire - this staying inside is not a long term option for me! HATE, HATE, HATE the heat! Erin
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06-25-2009, 08:10 PM | #6 | |||
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Member
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Quote:
I agree we live in a great state, but with the greatest HOT temps around! Ugh, the heat is killing me this week. 104 yesterday and I spent 6 hours in the sun. I'm nuts!!!.....but still kickin!! Love my A/C and Blue Bell Ice Cream!! |
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06-25-2009, 08:36 PM | #7 | ||
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Member
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The heat and humidity kick my butt, I will be doing great and then make the mistake of stepping outside and I am done for the day. Just 5 minutes in the heat and I am like melting jello.
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06-26-2009, 11:29 AM | #8 | |||
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Member
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We are melting here in FL to, everyone is a dripping mess ! LOL.... I run my ac year around - set at 73 - so refreshing ! Luckly hubby runs hot also, so it works well for us. Company can bring a sweater ! LOL.....
Mary
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06-26-2009, 11:48 AM | #9 | ||
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Junior Member
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I pretty much stay out of the heat as it is since I am also in menopause and the darn hot flashes make everything uncomfortable. Fortunately the hf are controlled by medication. However, I do break out in hives (all over) when I get overheated. Don't really know why -- I just do.
Thanks for all of the advice. You are all so helpful and patient in answering all of the questions. |
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06-26-2009, 12:24 PM | #10 | ||
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Junior Member
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I've always liked it hot & am very cold intolerant, thought I'd be better moving south,.. not!!...and now I see why I had such severe reactions to trying to ride horses at a show in the extreme heat..missed many classes & of course most horse shows up north are outside in summer sun...those days are gone forever, can't even ride the horses now, & boy do I miss it..was hoping to get back in the saddle this summer with help of meds, but it's not happening...yesterday had the equine dentist & my friend had to be there cuz I could not do it...grrrrrrr...I'm not a happy camper...
Dottie |
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