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Old 07-10-2009, 11:41 PM #21
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Smile Hi Pat!
How are you? Are you dooing better? What was going on? Please let me know how you are when you have the time/energy!

I FNALLY got off the sofa today and got some work done -or some reason, IV IG gives me a HUGE boost, but the other makes me tired - maybe b/c my neck hurts the whole time - I was getting morphine and pain meds every 4-6 hours - SCARY stuff!

We even have plans for this weekend! After Mike's radio show our dear friends are coming over fo cards - YIPPEE!!!!!

Can't wait to hear from you!
Big hugs!
Erin







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Hi Erin,

Sure hope it works well for you. Get plenty of rest the first few days home!Take care.

Hugs,
Pat
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Old 07-11-2009, 12:09 AM #22
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Smile Hi Ckitty60!
Hey there! I love neurotalk,as well! Before I found this site I was scared and angry all the time -there really wasn't anyone that I could share my feelings with......

I FINALLY feel better! I have been on the sofa all week long - trying to catch up on much needed sleep after not sleeping @ the hosp..........

Needles really scare me, so I am a TERRILe patient when they insert the line....Hopefully you'll never need it, but if you do, it is well worth it - trust me!

Big hugs!
Erin




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So glad to hear you are home. I hope you are feeling better. That whole needle the size of a straw thing sounds scary! Not sure how all that works - haven't been there yet. Hope you are resting well and have a good weekend. I do love this site. I can't really describe what it has meant to me already. Thanks so much for your help and encouragement!! Hope you have a good nights rest.

ckitty
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Old 07-11-2009, 10:34 AM #23
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erin-glad you're safely home! enjoy whatever is doable and as my dh says"pace yourself" easier said than done!!!
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Old 07-11-2009, 08:01 PM #24
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Sue V
I was just diagnosed about 4 months ago. I am still struggling with fatigue every day. I am learning from several here that I have got to do better with resting when I need to. I just started on Imuran about 3 and half months ago. Mestinon and Imuran are helping but I am still pretty tired every day. I work full time. When were you diagnosed and how are you doing? Everyone here is great. This is such a great place to come to. I am so glad I found it. Thanks so much for the welcome!
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Old 07-11-2009, 08:11 PM #25
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TxSimon,
Thanks so much for the welcome. This is a great site. Everyone is wonderful. Hope you are having a good weekend.
ckitty
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Old 07-11-2009, 11:40 PM #26
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Quote:
Originally Posted by Ckitty60 View Post
TxSimon,
Thanks so much for the welcome. This is a great site. Everyone is wonderful. Hope you are having a good weekend.
ckitty


ckitty,
Hope this finds you having a great weekend also. Mine has been ok, as long as I stay out of the Texas Heat Wave of 2009!!! Keep in touch,
Hugs,
Simon
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"Thanks for this!" says:
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