Hey guys! Quick question....my hemo ordered an antibody test and my antibodies are STILL waaaay high - 300 - granted, that is half what they were when I was in the ICU, but I thought the pred would bring them down quite a bit...any ideas?

Erin

Hey Erin,

I had my first blood work in 01 and I don't remember the numbers, but they were high. In 03, a year after the thymectomy he repeated them and much to his surprise they were actually higher?! I was only taking mestinon. He never repeated them again saying it really would serve no purpose. It was after that first year from having the surgery that I started having small improvements almost daily and continued improving for 2 more years. While I still have set backs and some not so good days, I am so much better now than I was back then...different person! It's going to happen for you too my friend...you'll see! Take care & rest if you need to. Tonight is movie night here.

Big Hugs,
Pat