[Cooley]

Diagnosed 3 days ago. I just read the confused thread. And I know that I'm in the right spot. Very glad to find a site like this with good info.It took 13 years to be diagnosed so for me even though I'm not feeling well etc. I have aname for it and some possible solutions. I look forward to reading more threads. thanks

[redtail]

HI Cooley

welcome!!! Wow 13 years is aa long time to wait for aa diagnosis.
Its aa great sight very supportive and informative, and we all look after each other.
Looking forward to seeing more of you
take care
Kate

[Pat 110]

Hi Cooly,

Welcome to the group! Would like to hear more of your story when you feel comfortable and up to it. I can't imagine what you must have gone through for 13 years! Glad to hear you finally got a diagnoses and found this wonderful & supportive site. Take care and looking forward to hearing from you.

Hugs,
Pat

[rach73]

Hi Cooly,

Yes your right you have come to the right place.

This site has been invaluable to me. I suggest as well when you are up to it going through previous posts / topics as these have excellent hints and tips in them. I have learnt so much from reading these!

May I be really nosey, as thats what Im good at apparently? LOL, what your main symptoms are, how you were diagnosed and what part of the world you are from. Perhaps when you are feeling up to it you can give us a history of how its taken 13 years to be diagnosed. If it makes you feel better there is a person i the uk that took 32 years. So you've done quite well!!! LOL

Really lovely to have you join this little online community!

Kindest regards
Rach

[Joanmarie63]

Cooley,

Welcome to the group of the best MGers I have ever met. It too took many years for me to be DXed and I remember smiling for hours afterward because finally they had a name to my problem. There is help and support here and as you read the posts you will see that many of the things that you feel are shared by everyone. I know I used to think it was "just me" as far as things I was feeling and then someone will put up a post asking "does anyone else feel this" So please feel free to share your story and never think it is "just you" MG is a very strange illness and effects everyone in different ways at different times.

Welcome to the group

[erinhermes]

Hello and WELCOME! I've said it bfore and and I'm sure I'll say it again, bt you have found the BEST SITE on the web for MG! There are soooooo many amazing, caring, wonderful people here who are always willing to lend a sympathetic ear...........

13 years! Wow! You must have some amazing stories! We have all been through the mill in different ways.....some of our stories are too painful to share - the wounds are still too raw...

Anyway, welcome again and know that WE ARE HERE FOR YOU! 24/7! THere are people from all over the world, so there should always be someone on to talk!

Can't wait to hear from you!
Big hugs!
ERin

[suev]

Welcome Cooley!

I newly dx'd (last month) - but thank goodness it didn't take 13 years to get the 'puzzle' solved for me!! Reading many of the posts here, I know I am very lucky.

Looking forward to getting to know you better...great group of folks here...and super sources of info.

Sue

[TxSimon]

Cooley,
Welcome to a wonderful site for MG situations. The group here is so very supportive and you will gain valuable info and also be able to share with others your experiences. Both sharing and seeing what others have gone thru is very helpful. Glad to have you onboard!
Welcome,
Simon

[ras1256]

Hi Cooley - goodness, what a long time to have to wait for an MG dx. I'm curious too about your quest for an answer. I hope you feel comfortable sharing, because even those of us that have dealt with the disease and the neuro world for a long time get something out of new members experiences.

And I'm sure the experiences of others of us will help you as well! This is a very caring group of friends here - not just another forum, and they have helped me alot and I have learned more here than in hours of research! Personal experiences are so much more real that what you can read the websites - here we get to know each other and information comes out that the researches just don't know, it seems.

So feel free to join in when you feel up to it. What are they doing for you now that you have the dx? Whatever it is, I hope it has a dramatic affect for you and get's you strong quickly!

[maryec]

Hi cooley
I am so glad your going to get the help you need, after waiting so long ! This is an amazing forum, the people here are awsome, & caring.
Mary