[rach73]

Hi,

some of you will be familiar with my story......for those of you who aren't I have posted before (seronegative patients how did you get your diagnosis, angry grrrr and does this sound familiar).

I had to ring my GP today as I have or now had a hospital appt at end of July to do with a seperate issue. I informed GP today that Im no longer taking lamotrigine and the reasons why. I also asked for a referral to another hospital to see a different neurologist. His response was that he wasn't saying no, but we needed to have a long chat and he wanted my husband present. Something he's never requested before, although hubs has accompanied me many times as I am no longer able to get to the surgery alone. I feel the sympathetic act, a pat on the head and being told to run along happening here.

I think GP is sticking with the BS diagnosis of Cortical Plasticity, despite the fact that Im showing all the classic signs of MG. The point of the meeting is and I know Im guessing, is to try and get me to accept this diagnosis and to not get the referral. As obviously this costs money. The spanner in his works is that I will pay to see them privately.

How do I approach this meeting? I dont want to come across as the hysterical female clinging onto a diagnosis. Im obviously angry and frustrated and the total incompetance being shown towards me.

What do I do? I have the footage of my positive but regarded as negative tensilon test do I take that.

I need some sound advice as this meeting is crucial as my GP is under the belief that this is stress/ mental health based, yet when Ive asked to see the mental health team its come to nothing. Im not taking medication for a mental health issue.

Obviously the UK system is very different to the USA.

I haven't had a response from Angela Vincent, nor have I had a response from the National hospital of Neurology and neurosurgery.

Im at my wits end.......Any responses will be greatly appreciated.

Thanks
Rach