Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 08-02-2009, 09:48 AM #1
Tbarney Tbarney is offline
Member
 
Join Date: May 2009
Location: Iowa
Posts: 163
15 yr Member
Tbarney Tbarney is offline
Member
 
Join Date: May 2009
Location: Iowa
Posts: 163
15 yr Member
Default shots? --Shingles and H1N1

Anyone here get these or are getting the shots for Shingles or the H1N1 flu?

With an autoimmune disease we are likely to contract other diseases. I see my neuro on Fri. and was going to ask him about these. But I was wondering what others were doing about these.

I thought I read something somewhere about the combination of taking CellCept and getting the H1N1 shot, but I can't remember what it was. I am presently taking CellCept.
Tbarney is offline   Reply With QuoteReply With Quote

advertisement
Old 08-02-2009, 10:22 AM #2
Nicknerd's Avatar
Nicknerd Nicknerd is offline
Member
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
10 yr Member
Nicknerd Nicknerd is offline
Member
Nicknerd's Avatar
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
10 yr Member
Default Hey T

My docs. warned me about getting any shots...As much as you want to be safe from these viruses, I would seriously avoid getting the shots, especially if you're immunosupressed/have an autoimmune disease...
Nicknerd is offline   Reply With QuoteReply With Quote
Old 08-02-2009, 11:39 AM #3
Joanmarie63 Joanmarie63 is offline
Member
 
Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
Joanmarie63 Joanmarie63 is offline
Member
 
Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
Default

I myself don't get any shots, last time I got a shot was for german measles and guess what, yup, I got the german measles. So no shots for me, I will just have to take my chances
Joanmarie63 is offline   Reply With QuoteReply With Quote
Old 08-02-2009, 04:06 PM #4
maryec's Avatar
maryec maryec is offline
Member
 
Join Date: Apr 2009
Location: Florida
Posts: 291
15 yr Member
maryec maryec is offline
Member
maryec's Avatar
 
Join Date: Apr 2009
Location: Florida
Posts: 291
15 yr Member
Default

I was told as long as it is not a live vaccine, like a flu shot, it is good to get it. Any live vaccine is a big NO NO, I am not sure if the H1N1 is live or not.
Mary
__________________

Mary
.
maryec is offline   Reply With QuoteReply With Quote
Old 08-02-2009, 07:47 PM #5
erinhermes's Avatar
erinhermes erinhermes is offline
Senior Member
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Smile Hi Tbarney!

Hey there!

I did get the regular flu shot, but NOT one for anything else. I was advised by all of my docs to NEVER get the live anything - EVER!

How are you feeling today?Are you feeling better?

Big hugs!
ERin





Quote:
Originally Posted by Tbarney View Post
Anyone here get these or are getting the shots for Shingles or the H1N1 flu?

With an autoimmune disease we are likely to contract other diseases. I see my neuro on Fri. and was going to ask him about these. But I was wondering what others were doing about these.

I thought I read something somewhere about the combination of taking CellCept and getting the H1N1 shot, but I can't remember what it was. I am presently taking CellCept.
__________________
Erin
.
erinhermes is offline   Reply With QuoteReply With Quote
Old 08-02-2009, 09:50 PM #6
Tbarney Tbarney is offline
Member
 
Join Date: May 2009
Location: Iowa
Posts: 163
15 yr Member
Tbarney Tbarney is offline
Member
 
Join Date: May 2009
Location: Iowa
Posts: 163
15 yr Member
Default

Yeah, I'm feeling pretty good. I am actually in the middle of a 5 day vacation in Branson, MO. Going to be in the high 90s tomorrow. Heading to a water park. I'll wear lots of sunscreen and find some shade.
Tbarney is offline   Reply With QuoteReply With Quote
Old 08-02-2009, 10:40 PM #7
motorhead's Avatar
motorhead motorhead is offline
Junior Member
 
Join Date: Jul 2009
Location: peoples republik of kalifornia
Posts: 53
10 yr Member
motorhead motorhead is offline
Junior Member
motorhead's Avatar
 
Join Date: Jul 2009
Location: peoples republik of kalifornia
Posts: 53
10 yr Member
Default

tamiflu and relenza are supposed to be ok for mg. you might want to talk to your doc about those options if you are at risk of exposure. they tend to be rationed in event of a large outbreak. i'm right near the border, we've had over 700 confirmed cases and 12 deaths to date.
motorhead is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Any thoughts H1N1 vaccine? judymoody Medications & Treatments 10 09-07-2009 06:42 PM
RSD and Shingles? Summertime Reflex Sympathetic Dystrophy (RSD and CRPS) 4 10-25-2008 11:41 PM
shingles anyone?? please sabimax Multiple Sclerosis 18 09-05-2008 05:36 PM
shingles cat265 Vitamins, Nutrients, Herbs and Supplements 9 04-17-2008 06:26 PM


All times are GMT -5. The time now is 04:40 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.