Hi,
Mestinon didn't help my occular symptoms much either - but when i started the steroids they cleared pretty quick. I've never had pain associated with my eyes but I do find bright lights fatigue my eyes quickly and I too have become a sunglass convert (plus they hide the droopiness on bad days)! Certain flourescent lights bother me, but not others. Hope you are all well!
~Kathy

Hi Tom,

Welcome to the group! My eyes are very senstive to certain lighting and the sun. I don't have pain, but I do get double & blurry vision and ptosis. Any over use such as reading will cause them to tire which brings on any or all symptoms. Good luck with the emg and let us know how you make out. Take care.

Hugs,
Pat

interesting. photosensitivity seems to be generalised. the fluorescent and sunlight are especially interesting. that would seem to indicate an unusual sensitivity to u.v.. there is even one school of thought that claims unshielded fluorescents contribute to cataracts as much or more than sunlight. i wonder if this aspect has ever been researched or studied? caused me a few problems since lighting is my work.

It's kinda crazy...I never realized I had eye issues until I was in the hospital...I mentioned to the doc. that since I was 17 or so, I've been so sensitive to sunlight that my eyes would droop and sorta spasm and I couldn't get them open for maybe 5-minutes or so...This problem is much worse now...I have to wear sunglasses even inside sometimes...God, I'm realizing that I've probably had this MG for many, many years! I also had some twitching and a bit of facial weakness around the same time the eye-sunlight-sensitivity started...I always chalked it up to nervousness or fatigue! Too bad I never told the doc. about this long ago!

I've also always been very sensitive to fluororescent lighting...Couldn't stand classes that didn't have natural light coming through a window...Wanted to wear sunglasses, but didn't want to look weird...lol