I have always had the blurred , double vision , but never the droopy eye., yesterday I kept having alot of pain behind and around my eye., now today the eyelid is very droopy., What does this mean., am I getting worse??? will it droop more.....

I think for everyone it is different. A droopy eye was what led me to find out I had MG. It was my major symptom. I do not have blurred or double vision. My droopy eye comes and goes. Sometimes it is barely open. Lately it is only about 1/4 shut, those who don't know me can't even tell anything is different.

It's different for everyone and it depends on what you've been doing. If you've been reading a lot or driving or watching TV, etc., it can get worse. Maybe you've had ptosis before but haven't noticed. I had it my entire life and didn't notice it until I was 41 years old!

If you are overall weak, ptosis will get worse. You are using up the muscle gas (acetylcholine) that you need to keep your muscles strong when you do anything. You don't have to be "using" the muscles around your eyes in order for them to get weaker. Your acetylcholine "gas tank" gets lower and effects all your muscles to varying degrees. Make sense?

If you are worse, you should tell your neuro about it.

Annie

Hey honey!

For ME pain and droopy eye/problems seeing means that I need to get another "boost" in the form for IV IG or plasma exchange - as SOON as I have that problem I call Dr I and am back @ the hosptal.

Call your neuro and let him know what's going on ASAP! It's really important!

Hang in there, sweetie! Don't forget to call!

Love,
ERin