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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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08-10-2009, 06:58 AM | #1 | |||
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Well got the staples out, I had 20 of them, yuk ! I received my pathology report, & need to fax to my neuro now so he can put it all together. Not good news, I have denervation, varied fiber size, type II atrophy with scattered type I atrophy small grouping. Sural nerve which is a sensory nerve is normal, no vasculitis. I was hoping it was an immflamatory conditon, but looks otherwise, I will leave it to my neuro to figure out, but am worried! Hoping for good news!
Mary
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Mary . |
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08-10-2009, 08:17 AM | #2 | ||
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Hi Mary,
I am so sorry you didn't get better news. I hope you will be seeing your neuro soon and he will have a treatment plan. You have been through so much. I hope you are feeling a little more comfortable since they removed the staples. I will be keeping good thoughts. Take care. Big Hugs, Pat |
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08-10-2009, 08:36 AM | #3 | ||
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I wish it were better news, you will be in my thoughts, please keep us updated
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08-10-2009, 10:29 AM | #4 | ||
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You're in my thoughts and prayers.
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08-10-2009, 10:34 AM | #5 | ||
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Mary,
Very sorry to hear your news. I'm glad you have more definition on what's going on - but sorry that test results are as they are. Pls. let us know what neuro says. You are a strong person with great optimism which I admire very much. You'll be in my thoughts, Sue |
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08-10-2009, 11:59 AM | #6 | ||
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sending good vibes to you from up here.
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08-10-2009, 12:25 PM | #7 | |||
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Hey sweetie!
I am so sorry you are going through this. I know this sounds really silly, but I don't understand exactly what it is you are saying......is this some sort of degenerative disease? Are there any meds you can take to help? What is your dr's prognosis? I know you are worn out - -20 staples - ouch! - but please let me know when you have the time/energy! My thoughts and prayers are always with you! Love, Erin Quote:
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08-10-2009, 01:44 PM | #8 | |||
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Thank you all!
Erin, I posted the pathology report from my muscle biopsy, I am going to see my Neuro, once he puts everything together, for a diagnosis, he needs clinical ( what he has observed during our office visits), all those labs I had done, my EMG & NCV, & pathology from my nerve & muscle biopsies, he will put all those together & hopefully we will have an answer, I may need to have a spinal & mri of my brain redone as the last time was 2004 & I do have left tempral lobe lesions, with one frontal lobe lesion, not MS they said though at the time. I do know denervation atrophy is not good though. I will keep you all posted Mary
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08-11-2009, 12:52 AM | #9 | ||
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Thanks for keeping us updated, Mary. I am sorry for the results you've received but hopeful your neuro can make things better. You're in my thoughts and prayers.
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. Sharman |
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08-11-2009, 06:18 PM | #10 | ||
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Thinking of you Mary!
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