Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 08-13-2009, 10:27 PM #11
djvallejo djvallejo is offline
Junior Member
 
Join Date: Aug 2009
Location: Tampa, FL
Posts: 31
10 yr Member
djvallejo djvallejo is offline
Junior Member
 
Join Date: Aug 2009
Location: Tampa, FL
Posts: 31
10 yr Member
Default

Yes, was checking out probotics, saw something on TV the other night. Not sure if I told you already but going to a Chiro/Homeopath next week. Going to talk to him specifically about vitamins and supplements not about spinal adjustments. Mother in law goes to him and she said he is great, really digs deep to check on vitamin and mineral deficienies through bloodwork etc. Not the typical Chiro. Well let you know how it goes.
djvallejo is offline   Reply With QuoteReply With Quote

advertisement
Old 08-14-2009, 10:38 AM #12
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
10 yr Member
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
10 yr Member
Default

Quote:
Originally Posted by djvallejo View Post
Yes, was checking out probotics, saw something on TV the other night. Not sure if I told you already but going to a Chiro/Homeopath next week. Going to talk to him specifically about vitamins and supplements not about spinal adjustments. Mother in law goes to him and she said he is great, really digs deep to check on vitamin and mineral deficienies through bloodwork etc. Not the typical Chiro. Well let you know how it goes.
Do you know if he is very knowledgeable in MG? Maybe you could bring a print out of the list of drugs we cannot take with you...just a thought. Good luck!

Hugs,
Pat
Pat 110 is offline   Reply With QuoteReply With Quote
Old 08-14-2009, 01:10 PM #13
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
10 yr Member
Default

I think Pat makes a terrific point. My experience with (holistic) chiropractic is that they have limited knowledge of specific disease - - mostly because they are trained to mitigate symptoms first...which, when eliminated, makes it easier for the body to heal itself.

I totally believe in that (and have used a holistic chiro for years). But my guy says there isn't too much he can do for my MG other than releasing the stress points and opening the channels to improve the 'energy' paths - - one less drain on anyone's body. And vitamins, B12 and Vit D (just about all the docs say this).

I will mention that at first he suggested about $300 worth of other supplements that would 'improve' my blood work / body chemistry. I passed when he admitted that only the B12 and Vit D had much to do with neuro stuff.

Sue
suev is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DesertFlower (08-16-2009)
Old 08-14-2009, 02:03 PM #14
djvallejo djvallejo is offline
Junior Member
 
Join Date: Aug 2009
Location: Tampa, FL
Posts: 31
10 yr Member
djvallejo djvallejo is offline
Junior Member
 
Join Date: Aug 2009
Location: Tampa, FL
Posts: 31
10 yr Member
Default Thanks for response!

Quote:
Originally Posted by suev View Post
I think Pat makes a terrific point. My experience with (holistic) chiropractic is that they have limited knowledge of specific disease - - mostly because they are trained to mitigate symptoms first...which, when eliminated, makes it easier for the body to heal itself.

I totally believe in that (and have used a holistic chiro for years). But my guy says there isn't too much he can do for my MG other than releasing the stress points and opening the channels to improve the 'energy' paths - - one less drain on anyone's body. And vitamins, B12 and Vit D (just about all the docs say this).

I will mention that at first he suggested about $300 worth of other supplements that would 'improve' my blood work / body chemistry. I passed when he admitted that only the B12 and Vit D had much to do with neuro stuff.

Sue

As most you know not a lot of folks know much about MG but i have to say that he has been going hIs homework even before my appointment ( my Mother on law has been going to him). My emphasis will be on looking for vitamin deficiencies and to discuss the article I provided in advance which i have attached a link for you viewing pleasure. I found that one person (this was many years ago to) was able to get a combo a vitamins and supplments that put her into remission - Can't post links in replies for some reason so serch google with Myasthenia Gravis and Walter Last.

Excerpt - "This manganese therapy for MG was discovered and tested in the 1940's and 50's in the U.S. by E. K. Josephson (A-albionic Research 1961).

The report of his first MG case with this new method is quite instructive. A 43-year-old female developed the symptoms of MG in 1932. She had intermittent X-ray treatments for thymoma over many years. Drug treatment was started later but gave only a slight transient improvement and after some months she failed to respond completely. Nutritional therapy was started in 1937 with high doses of vitamins A, B, and C, along with a high salt intake because of severe adrenal weakness, and glycine, an amino acid important for the muscles. Within three weeks the patient was much improved. The later substitution of part of the salt with potassium chloride caused acute glaucoma and had to be stopped.

After a year the therapy started to become ineffective and the condition deteriorated again. Now vitamin E was added in the form of wheat germ oil. The condition rapidly improved and symptoms of MG disappeared except for occasional mild relapses. However, after two years MG reappeared without relief from the treatment.

In 1942 manganese sulfate was added to the therapy. Within one week her muscle strength was better than at any time during previous treatments and all symptoms of MG disappeared. The thymus tumor that had previously been unsuccessfully treated with X-rays disappeared as well. Until her death ten years later from a heart attack she had no more symptoms of MG."
djvallejo is offline   Reply With QuoteReply With Quote
Old 08-16-2009, 05:23 PM #15
DesertFlower's Avatar
DesertFlower DesertFlower is offline
Member
 
Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
10 yr Member
DesertFlower DesertFlower is offline
Member
DesertFlower's Avatar
 
Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
10 yr Member
Default

I have been taking vitamin B complex and finding that it helps my energy last longer every day. I have tried taking the vitamins and then stopping for a while and definitely they help. I am going to experiment with other vitamins and foods next.
DesertFlower is offline   Reply With QuoteReply With Quote
Old 08-17-2009, 09:46 PM #16
Shari_W Shari_W is offline
Member
 
Join Date: Aug 2009
Posts: 241
10 yr Member
Shari_W Shari_W is offline
Member
 
Join Date: Aug 2009
Posts: 241
10 yr Member
Default

I've had MG for years now and ever since I was diagnosed my sister has been telling me to take some kind of vitamin. I see that Vitamin B is good to take when you have MG but I have a question. What is the difference between vitamin B12 and Vitamin B Complex?

Is one better to take than the other if you have MG?

Shari
Shari_W is offline   Reply With QuoteReply With Quote
Old 08-18-2009, 12:59 PM #17
Shari_W Shari_W is offline
Member
 
Join Date: Aug 2009
Posts: 241
10 yr Member
Shari_W Shari_W is offline
Member
 
Join Date: Aug 2009
Posts: 241
10 yr Member
Default

Quote:
Originally Posted by Shari_W View Post
I've had MG for years now and ever since I was diagnosed my sister has been telling me to take some kind of vitamin. I see that Vitamin B is good to take when you have MG but I have a question. What is the difference between vitamin B12 and Vitamin B Complex?

Is one better to take than the other if you have MG?

Shari

I don't need a response to my question. I figured it out on my own. The B complex is probably better because it contains all the B vitamins needed in one pill. Silly me!
Shari_W is offline   Reply With QuoteReply With Quote
Old 08-18-2009, 02:51 PM #18
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default

Shari, You were not being silly. There are a lot of people who can't get B12 from a pill/tablet. I don't have enough stomach acid, even though I take a supplement called Betaine HCL that helps digest food, to digest and absorb B12. Without B12 in the body, you die. So some people need to take sublingual B12 in addition to multivitamins (that include the B's) in order to have enough.

No question is ever silly.
AnnieB3 is offline   Reply With QuoteReply With Quote
Old 08-18-2009, 04:33 PM #19
Shari_W Shari_W is offline
Member
 
Join Date: Aug 2009
Posts: 241
10 yr Member
Shari_W Shari_W is offline
Member
 
Join Date: Aug 2009
Posts: 241
10 yr Member
Default

Thanks AnnieB3 I seem to ask more questions when it comes to taking anything else in addition to my MG meds because I tend to get a little paranoid about what may happen in once I take them.

I've had other prescription medication affect my MG after I took it but since Vitamin B is just a vitamin and it is natural, I guess everything will be okay once I start taking them.
Shari_W is offline   Reply With QuoteReply With Quote
Old 08-18-2009, 04:54 PM #20
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
Default

Shari, Studies have shown that there's no such thing as too much B12. Too much B6 and some other B's, yes. So it's "safe" but I would recommend using a well-known brand with a proven track record like Source Naturals or Jarrow.
AnnieB3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Shari_W (08-18-2009)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Myasthenia Gravis bobcatsrule Myasthenia Gravis 8 07-07-2013 09:09 PM
Hello! I am sad about Myasthenia Gravis Manatee New Member Introductions 7 11-27-2011 05:53 AM
Myasthenia Gravis and Natural djvallejo Vitamins, Nutrients, Herbs and Supplements 0 08-13-2009 07:17 AM
Myasthenia Gravis Ted Poole New Member Introductions 3 01-22-2008 04:54 PM
Myasthenia Gravis bobcatsrule New Member Introductions 5 01-07-2008 10:48 AM


All times are GMT -5. The time now is 05:48 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.