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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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08-18-2009, 06:17 PM | #21 | |||
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Hey,
I'm not sure whether someone posted this link already...I found this site very comprehensive...Covers some old ground, but very thorough....Check it out...If already posted, sorry! :$ http://www.seniorfitness.com/Show_Di...henia%20Gravis, Nicky |
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"Thanks for this!" says: | Shari_W (08-18-2009) |
08-18-2009, 07:53 PM | #22 | ||
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Member
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I'm going to buy some B12 vitamins tommorow and I have already eliminated quite a bit of the bad food from my diet. I will continue to cut back on a lot of other things too. Don't know why I didn't do this years ago. I guess this is coming from my recent hospital stays over the last couple of months.
Thanks for the info guys! I have always known that no matter how long one has had MG, there is always so much more to learn about it. |
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08-19-2009, 11:20 AM | #23 | ||
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Member
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Just saw this topic, sorry I havent been able to post much, difficulty typing nowadays.. Hand just cramps up. Lol.. I've mentioned before, when my initial diagnosis was MG, I was given herbs together with Mestinon. The herbs were supposed to work, boost the immune system, and also strengthen the digestive system. However turns out that mine may not be MG, so the meds didn't really work for me. My doc's on my MSN though, if any of you would like more info let me know!! Was thinking perhaps we can get some prescription from him. =)
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"Thanks for this!" says: | Nicknerd (08-26-2009) |
08-26-2009, 07:40 PM | #24 | |||
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Junior Member
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i was curious as to why the results with manganese recieved so little attention, so long ago so i did a little digging. dr. emanuel mann jopsephson could cure cancer and no one would take it seriously! along with writings about nutritional treatments for various disorders he has a wealth of published political material, mostly concerning conspiracy theories. this guy was wearing a tinfoil hat back when they were made of real tin!
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"Thanks for this!" says: | DesertFlower (08-26-2009), Nicknerd (08-26-2009) |
08-26-2009, 11:03 PM | #25 | |||
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Hey Motorhead,
I've wondered that too....When I read that Manganese had actually shrunk some people's thymomas to the point that they didn't have one anymore and put their MG into remission, I asked both my neuro. and Surgeon about them...They both basically said that they've never heard of Manganese being helpful for MG/thymoma....It was bizarre considering it was actually a treatment at one point.... Nicky |
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08-26-2009, 11:22 PM | #26 | ||
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Grand Magnate
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And that's the problem, isn't it? No alternative medicines are really being studied - probably because the drug companies wouldn't make any money.
Any treatment, traditional or "alternative" needs to be looked at on an individual basis though. We can't all do steroids or IVIG or plasmapheresis. Some people can't even do Mestinon. And too many of specific vitamins and minerals can make you worse. http://www.lenntech.com/periodic-cha...ents/Mn-en.htm I hope everyone will proceed with caution with any kind of self-medicating or prescribed medications! If you do try something, try it one thing at a time in case you get any adverse reactions or side effects. Then you'll know it's either the new thing or the new thing interacting with something else you are taking. Annie |
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09-09-2009, 07:51 PM | #27 | ||
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New Member
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If anyone is looking for informative naturpathic information about self healing through vitamins a good book to read is Natural Cures they dont want you to know about .I had seen the advertisement on TV a couple years back and i was always curious about the information in the book .A few months ago i was doing my routine MG info search on Google and i actually came across a site that had a ton of facts from the book.I dont think it has all of it , but it definatly has all the info you need .
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09-20-2017, 12:14 PM | #28 | ||
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Newly Joined
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Any success with the information you posted?
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