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-   -   Totally confused and scared! (https://www.neurotalk.org/myasthenia-gravis/98752-totally-confused-scared.html)

billie 08-20-2009 04:09 PM

Blessings to You
 
Erin, I just wanted to add my 2 cents, since I empathize completely with staying in bed, chronic back pain and wondering what treatment/doctor to go with. It is scary and debilitating. I am unfamiliar with your particular condition and the terms that you use, for the most part, but it sounds to me that you have many wonderful friends who understand your situation and have pretty much concurred with your Neuro. I do know that the various kinds of PT can help immeasurably, to include the TENS Unit with which you are probably familiar. When electrodes are properly applied [on right place and with adequate conducting gel and adequate tape], the TENS can nix the muscle spasm type of pains many of your friends referred to in as little as a few minutes time. PT evaluation is necessary. I am also familiar with the advice re too much cortisone, and I too vote for PT v/s the injections. You might try consulting another pain specialist, again, of course, with your Neuro's knowledge. Carrying a complete list of meds from doc to doc, when multiple docs are needed, as in my case, is imperative in staying out of adverse reaction/side-effect trouble. Even then, it doesn't hurt to "google" a medication or to direct a question to Neuro members, as you did. The member who spoke of applying direct pressure to pain points had a good one - point that is. Love and Good PT to you. billie

erinhermes 08-21-2009 10:11 PM

Hi Billie!
 
Hey there! How are you today? That TENS unit sounds great! On the days when I have energy I want to be able to fully take care of my fellas! LOL!

So, you live in Texas too? Isn't this heat awful? I've been housebound fora while, so it felt GREAT to be out and about with my hubby today! We had the best time! Plus, I was fitted with my back brace and that helped as well!

I am really looking forward to my PT - I don't know if I'll ever not need some amount of meds, but the thought of being in just a little bit less of pain sounds AMAZING!:D

Can't wait to hear from you!
Erin:D





Quote:

Originally Posted by billie (Post 555199)
Erin, I just wanted to add my 2 cents, since I empathize completely with staying in bed, chronic back pain and wondering what treatment/doctor to go with. It is scary and debilitating. I am unfamiliar with your particular condition and the terms that you use, for the most part, but it sounds to me that you have many wonderful friends who understand your situation and have pretty much concurred with your Neuro. I do know that the various kinds of PT can help immeasurably, to include the TENS Unit with which you are probably familiar. When electrodes are properly applied [on right place and with adequate conducting gel and adequate tape], the TENS can nix the muscle spasm type of pains many of your friends referred to in as little as a few minutes time. PT evaluation is necessary. I am also familiar with the advice re too much cortisone, and I too vote for PT v/s the injections. You might try consulting another pain specialist, again, of course, with your Neuro's knowledge. Carrying a complete list of meds from doc to doc, when multiple docs are needed, as in my case, is imperative in staying out of adverse reaction/side-effect trouble. Even then, it doesn't hurt to "google" a medication or to direct a question to Neuro members, as you did. The member who spoke of applying direct pressure to pain points had a good one - point that is. Love and Good PT to you. billie


ConnieS 08-25-2009 10:51 AM

Hey Erin
 
Yup, there will be times when the going gets tough, but hang in there girl! I always find it wonderful to think of the things i still have to do, and its easier to perk myself up. =) Or i focus on the things which I love to do, and pamper myself for a while... To kick the useless thoughts out!!! You have a great neuro hon, and I would trust him to give me the right advice since he's been through it all with me. they often say that people will illnesses are easy prey as we'd give anything to cure ourselves of our symptoms, so do take care!

maryec 08-25-2009 12:05 PM

Connie
You put that so well !
Mary


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