Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 08-19-2009, 11:17 PM #1
Patsy Patsy is offline
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Join Date: Aug 2009
Location: Sweden
Posts: 1
10 yr Member
Patsy Patsy is offline
New Member
 
Join Date: Aug 2009
Location: Sweden
Posts: 1
10 yr Member
Default Newbie

Hi All,
Like to introduce myself. I'm female, 53, in Sweden, and have a suspected case of myasthenia (have only had blood tests taken so far). Have rapid onset of symptoms ranging from eye muscle problems (started with spasms of eyelids), muscular weakness in arms and legs, neck, muscular weakness in vocal chords and to top it off now have stiff muscles in my trunk (all in 6-7 weeks).
Hubby and I have two daughters, 17 and 13 yrs, and hubby is away for six weeks at a time (merchant navy). Guess if I'm panicking about onset of rapid decline and he's away...
Have been diagnosed w (and sometimes treated for) anything from lyme disease to toxic thyroid disease over the past weeks. Began to have severe panic attacks after onset of symptoms when eyes and vocal chords weren't working properly and arms and legs didn't function either. Do not have droopy eyelids, do they always have to droop in order for myasthenia to be prevalent?

I hope to share lots of fun and joy here and also chat about what one can do to alleviate symptoms. Have just read about Graveton, does it work or is it hokus pokus?

Bye for now
Patsy
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