Quote:
Originally Posted by ChrisSabin
Kelly,
From what I know about IVIG and MMN you could be looking forward to years of good health as I did (14), and that was after having MMN for 13 years before being treated. Some friends who were diagnosed and treated early needed only occasional infusions to maintain their levels.
There was gradual weakening over the years in my case, not painful, just annoying foot and wrist drop - to the point where now IVIG has ceased to work -but not complaining! Am looking for alternatives. Be glad to answer any further questions about my experience with MMN and IVIG. Best of luck. Chris
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For myself, I don't know if the IVIg is helping or not. Been on it for 15 months.
Being unable to find an online support group dedicated to MMN, last weekend I set up a forum just for us at
http://www.mmnforum.com/forum
One of the categories is Alternative Treatments, which I am also looking into. I hope fellow MMN patients will take a look and share their experiences.
08-16-2011, 03:11 PM
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