Neuromuscular In memory of Rose Marie.


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Old 07-07-2010, 02:38 PM #1
Val888 Val888 is offline
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Unhappy Can I have some advice please??

My mother is 79 and is experiencing very swollen hands and arms. They are extremely painful, blotchy, red and burning hot. The pain is unbearable. It takes a couple of days for the swelling to go down. She has been investigated for stroke which was ruled out. Then blood clots, she is now referred to as a mystery.
The latest thought is gout? Can anyone offer any advice please the pain killers are not touching the pain?
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Old 12-07-2010, 07:04 PM #2
rose_thorn98 rose_thorn98 is offline
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Quote:
Originally Posted by Val888 View Post
My mother is 79 and is experiencing very swollen hands and arms. They are extremely painful, blotchy, red and burning hot. The pain is unbearable. It takes a couple of days for the swelling to go down. She has been investigated for stroke which was ruled out. Then blood clots, she is now referred to as a mystery.
The latest thought is gout? Can anyone offer any advice please the pain killers are not touching the pain?
She may have Erythromelalgia. You can read about it at www.erythromelalgia.org

It is a rare disorder and most doctors don't know about it. Most people who have it find it themselves and then seek a Dr. who knows about it.
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Old 12-08-2010, 01:18 AM #3
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Possibly RSD?
Our RSD/CRPS forum the link is to the sticky thread there -
http://neurotalk.psychcentral.com/thread247.html
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Old 12-15-2010, 10:23 PM #4
dahlek dahlek is offline
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Default I'm not sure I'm an expert, but? What about her meds?

Do try and find out about all the meds she is on? then web up each one by name as ' "medication" Full Prescribing information' If the site asks if you're a doc? You know what to say....
Get the publication in full screen size and READ ALL side effects of each and every medication. Then go and ask your pharmacist [if you find nothing like her symptoms] about these meds 'interacting'. Bet you mite find out more than you want to know about meds in this process!
But key to this all is finding out if your mother is experiencing 'medication' issues vs 'medical' issues. Eliminating the 'medication' can help you get more information as to what is causing the medical issues.
Sometimes treating symptoms can cause more symptoms, that may not be the case here? But it'd be wise of you to check it all out.
Have any endocrinologists or rheumatologists seen her? Just thoughts as to which doctor to call in these circumstances... Likely would depend on if she's got high or low endo or immune levels from various blood tests...
Know I'm pulling for her and for you! I'm hoping that you are able to find answers SOON! Hugs and hope !!!!!'s - j
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