Interesting. I'm not familiar with that disorder. Did they do an EMG? True myotonia is fairly easy to distinguish from other things using an EMG.

Oh yeah, I spent a week at the Mayo getting poked and prodded. I can attest that a 4-hour EMG is a thrill a minute.

A four hour EMG?? What did they do for four hours?! I went thru 1 1/2 hours, and I thought my EMG would never end! How long did it take to get your appt at Mayo?

What they did? They stuck needles in me and zapped me. All over. This being my third EMG of the year, I thought I was tough, but this time I cried.

Every neuro who has done an EMG on me ended up spending at least an extra hour. They get fascinated, or something. MMN is pretty unusual, so it must be like a butterfly collector coming across an extremely rare specimen.

It must be due to this rarity that when I called the Mayo they immediately accepted me and made an appt for the next month without even a referral. My Univ of Utah neuro was amazed; he said he's got another patient he's been trying for months to get into the Mayo. Apparently that person does not have MMN (I'm the only MMN patient he's ever seen.)