Neuromuscular In memory of Rose Marie.


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Old 08-11-2011, 02:37 PM #8
dscvr dscvr is offline
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dscvr dscvr is offline
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Quote:
Originally Posted by fward View Post
I was diagnosed with this disease in September 2010 anyone else out there with this disease? It has just recently caused me to stop working. Any one that has Thompsons I would love to chat.
I was diagnosed a couple of years ago and continued to work full time. Next week i'll be working part-time to take care of this...there has to be another way to treat this besides mexiletine. I just don't feel comfortable taking it with the side effects and such since there wasn't a dramatic difference. Trying to do research on the net for this is like running in circles. I want to find a doctor that is willing to experiment...what do you have to lose when your in pain every second of the day, right? I'm tired of reading that this is not a painful disease when that is absolutely 100 % false.
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muscles freeze up, muscles lock up, myotonia, myotonia congenita


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