Bill,
I would highly recommend you see a neuromuscular specialist. Unfortunately, these neurologists are few and far between, and normally only exist in a university setting. In Denver, there is Dianna Quan at University of Colorado. Start there. If you are up for a trip, then I would recommend an MD in Phoenix who is an expert in MMN/ALS/Neuromuscular, or a host of other docs around the country. Mayo is also great but might take a while to get into. I hate to say this but typically MMN doesn't affect the neck or speech. You absolutely need to be worked up by a specialist soon. The good news is if it truly is MMN there is treatment for it, although it is a complex intravenous treatment, the effects are immediate. But you really should be seen to get a definitive dx.
Hope you're doing well.

Hi MichelleG

I found that the Mayo was quick to let me in (about 4 weeks) as soon as they found I had an MMN diagnosis. It was less of a wait than to initially see my neurologist at the University of Utah.

Also, the IVIg hasn't done much for me, after a year.

4 weeks, that's pretty good! Normally with MMN, the effect of IVIG is immediate and dramatic - strenth returns, twitches decrease. Have you gotten worse? Of course Mayo is one of the go to places in the country for any condition!

Hi Everyone
I just stumbled across this forum today and have learned so much! My husband has been struggling with neuro symptoms for over 7 years. We took another trip to the Neurologist on friday he finally might have a diagnosis of MMN. He said that my hubby has to come back for an MRI (because MMN symptoms don't show up on an MRI so its to confirm diagnosis) then he will be refered to the head of Neurology at Vancouver General hospital (we live in BC) and then he will be given IVIg therapy. So we have to wait another 4 months for treatment. My husband is frustrated beyond belief. He has a foot drop in his left foot(where the symptoms started) and is starting to have a wrist drop in his left hand and hes left handed. I was wondering how much is the IVIg therapy? We have medical but we might have to pay first and then be reimbursed.
Thanks Lauren

IVIG is very expensive. It runs over $100 USD in the states PER GRAM. It is dosed by weight and for MMN the dosing is usually 2 gm/kg. Needless to say depending on how much someone weighs it can get extremely pricey. Here in the states you can get it at home, which is less costly than in the hospital of course. I'm just sad you all have to wait for 4 more months to get the treatment. I hope all goes well.

I started IVIg about 15 months ago and, yes, still declining. My Mayo doc says t is hopefully slowing the decline. Impossible to say without stopping completely to see what happens!