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New Member pre-MMN diagnosis

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Old 08-20-2011, 12:13 PM #1
twitchyfirefly twitchyfirefly is offline
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Join Date: Jul 2010
Posts: 49
10 yr Member
twitchyfirefly twitchyfirefly is offline
Junior Member
 
Join Date: Jul 2010
Posts: 49
10 yr Member
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Originally Posted by MichelleG View Post
4 weeks, that's pretty good! Normally with MMN, the effect of IVIG is immediate and dramatic - strenth returns, twitches decrease. Have you gotten worse? Of course Mayo is one of the go to places in the country for any condition!
I started IVIg about 15 months ago and, yes, still declining. My Mayo doc says t is hopefully slowing the decline. Impossible to say without stopping completely to see what happens!
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hand weakness, mmn, muscle wasting, speech changes

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