[WhataBreeze]

I feel that I have wonderful news to relate to all those who have followed my life and struggles do to my 18 month delayed diagnosis of Central Pontine Myelinolysis. Note, even the United States Government made my "Award for Disability," from August 2003 back to my Bariatric Gastric Bypass Surgery on Feb. 7th., 2002 (Post-Op Day One) at Barnes Jewish Hospital and Washington University in St. Louis, Mo. directed by Dr. John C. Eagon, I believe until my discharge on post-op day three after learning I was dropped in the surgical suite where I spent over 8 hours for an operation that at most could be 2 maybe 3 hours. Please note my Mother a Washington University retiree was told "No Information," until I was removed directly to my room at Jewish Hospital designated for those going through the Gastric Bypass and at that point she was told " he is a pretty big guy (BMI 61) for laparoscopic surgery which was Dr. Eagon's decision. Bottom line she was told my liver was large which I still have a hard time it being an extra 6 hours large. Of couse at that time neither one of us had any clue of all the extra curricular actions taking place in the operation.

Accepting my obesity and deciding to help myself get back into a condition respectable to extend my life along with my successful career as my decision was to go on hiatus between one or two years to make this decision possible. As you can see after the upcoming 10 year mark, I'm blessed to still be alive do to the fact that 50% to 75% of those diagnosed with Central Pontine Myelinolysis (CPM is shortened name of this neuromuscular disease/disorder) as in my opinion most die without a "True Diagnosis."

Today, my life schedule is only set by doctor appointments and the constant rehabilitation which is a must to keep me going. Not a day goes by that I can get through without some problem that leads me to not feeling well. I must say that since my advocacy in CPM began in 2003 my life following all the research which truly was very little in those professionals in the "World of Medicine." However, no matter how assute they may have been there is NOTHING like living with this iatrogenic (medical error in treatment) disease in which CPM is now being stated with the top research doctors.

I must apologize as I got off on a different thought process but I now feel I should not void the above as I'm sure there are those whom may be reading my postings for the first time. I mainly read in NeuroTalk because I'm in a stage that it's become a bit difficult between the tremors and the other movements so stick with me as this truly is excellent therapy for me my friend. In my closing paragraph below I will release what believe it or not what your about to read has delivered happiness in my way for the very first time because a very notable neuroradiologist has made his writings available through Google.

I'm personally hopuing to first chat and then possibly meet with a Dr. Mauricio Castillo whose book Neuroradiology Companion: Methods, Guidlines and Images. In Chapter 18 (Degenerative and Iatrogenic Disorders) starting on Page 199 makes it pretty clear as it now adds Bariatric Surgery to it's list of the most popular causes besides the fact there is no question that CPM has and continues to remain without the communication needed to be honest with the public of this world. I hope to continue this information as I do for those with CPM along with their families so we can pull together as needed. G-d Bless...

Franky (My Boston Terrier Neuro Service Companion) & Breeze (Thats Me)

[dahlek]

I am soo glad you are here and more importantly to share what YOU have gone thru and educate others in an accessable way.
I am proud to have met you [tho not Franky?] but, that shall come in time.
Folks, do not underestimate Mr. Breeze! He was on boards before I was even aware of them. He has heaps to share and we can learn a good deal from him!
I've missed you! [And Franky, too!] - j

[WhataBreeze]

Yes, we had tornadoes all around the St. Louis area last night on Good Friday.

In the last 9+ years since I acquired Central Pontine Myelinolysis, now I can say that God has not only protected me from the CPM as some 50% to 75% of us CPM victims of this medical error from treatment sadly pass on. Note, that's the statistics OF THOSE DIAGNOSED. Again, no one knows the TRUE numbers of CPM deaths world wide. I've continued to do my best assisting those who like myself was told NOTHING as my Bariatric Gastric Bypass Surgery, which took place at one of the Top Ten Medical Centers in the United States, turned out to be the initial makings of CPM in my opinion along with several other doctors in these years that those truly responsible hid between the lines. Now since I've started the CPM Awareness Foundation, I'm closer to writing a book from the actual patients point of view as long as my health will become stable. I look forward to saying hello to those who first chatted on BrainTalk like myself back in 2003. I always wonder about all those I helped with CPM and their loving families as well as those who lived on their own like I, "Except for my Franky my boston terrier that I adopted at a rescue when he was 10 weeks old." I took him to Baltimore with me when I was an outpatient at Kennedy Krieger and Johns Hopkins Institutes for rehabilitation the four months there. Ok, he is back from the morning duties. G-d Bless...

Franky and Breeze