[LAarchitect]

I was wondering if anyone had ever seen any info regarding people who are Hypermobile...(super loose joints) and its role in TOS. (I posted on the TOS forum as well)
I am currently in the midst of a debate between the PT, Orthopedist, Vascular and Neuro.....as to what is causing my TOS like symtoms.
It all started with a shoulder injury and the injury has never healed, my shoulder capsule is very loose thus causing the muscles around to compensate and tighten (even on the opposite side) to a point where I am having hand, forearm nerve pain.
I found this old post on another forum but cannot find the orig poster...so I thought maybe others would have seen something similar.
Thanks for any help with this....

This is the post I found on Sybermoms.com by Webwriter.

I have a chronic condition which is currently incurable with today's technology. It's called Thorasic Outlet Syndrome. In nature, it is very like Carpal Tunnel Syndrome, except that it affects the Thorasic Nerve instead of the Carpal Nerve. For anyone experienced with Carpal Tunnel, the easiest explanation is that I have it all the way up my arm, into my spine.

It's cause is the reason it's inoperable. I have extreme "tendon laxity," which is a fancy way to say I am double jointed and more flexible than Gumby. In short, my tendons give so much, my joints don't stay in place. This has caused "multi directional instability" in my right shoulder, meaning it flops around at willl, dislocating constantly.

Which irritates the nerve (TOS), cartilige (arthritis) and bursa (bursitis.) The standard cure would be to shorten the tendons, but because of the laxity, they would only lengthen again. Repeated surgery to shorten them again would cause scar tissue build up, defeating the purpose.

[Megan]

Do you have multiple lax joint or just ligamentous laxity of your shoulder? I guess you have excluded the possibility of one of the Ehlers Danlos Syndrome causes? There are about nine or ten levels (or more) of severity and manifestation which have been identified.

[LAarchitect]

I have multiple lax joints...both ankles (one has been fully repaired)
both shoulders and basically all the others seem beyond what is normal.
I have not been tested for EDS...seems like a next step for me.
Anyone know anything about the ability to repair EDS loose connections surgically...will it stay or just stretch out in the years to come?