Go Back   NeuroTalk Support Groups > >

Neuromuscular In memory of Rose Marie.

Neuromuscular Clubbed Foot/New to Group

Reply
 
Thread Tools Display Modes
Old 10-26-2013, 04:34 PM   #1
christineh
Newly Joined
 
Join Date: Oct 2013
Location: Bernardsville, NJ
Posts: 1
Default Neuromuscular Clubbed Foot/New to Group

Hello,
I am new to the group, hoping to gain knowledge or connect with someone that has the same issues. Does anyone on the board have knowledge of Neuromuscular Clubbed Feet. We have had NO positive results after surgeries and non invasive procedures to correct our daughters bilateral clubbed feet. Our Ortho Surgeon suggests an underlying neuromuscular condition.
Thanks for any help or info!!
christineh is offline   Reply With Quote
Old 10-27-2013, 05:56 PM   #2
Synnove
Member
 
Join Date: Jan 2013
Location: Florida
Posts: 314
Default

hi Cristineh
I hope this will help you:
I will refer you to a neurologist down here in Florida. I see that you live in New Jersey, but this could be worth your effords.
This doctor is Dr. Khema Sharma. He is professor of neurology at The University of Miami, Miller School of Medicine. And he is specializing in Neuropathy. He is Co-Director of Electromyography Laboratory there.
Director of MDA Clinic, Neuropathy Clinic, Post Poli Clinic, Neurology

Here is the adress: Professional Building,
1150 NW 14 th Street, suite 609
Miami, Florida, 33136

Phon : 305-243-3100 or toll free 877-836-387or try 305-243-6732.

I am pretty sure they treat children there. There are many different clinics, there are also clinic there at U of Miami with genetic testing etc.

The reason I think he might help you, is that I have severe neuropathy, and was referred to him. I also had clubfoot as a child. I had surgery as baby, and repeat surgery at age 3 or so I think I can remember.
But I had some muscular atrophy of my leg. I am now (not young) but 64 years old.
The first thing this doctor fucused on when I first saw him, was the fact that I had a clubfoot, and some muscular atrophe of my leg, and sever neuropathy.

Apperently ( this was new to me) people with different genetic and cogenital defects, can develope sever neuropathy in their middle age.

I do not know, but let me know what you find out, perhaps there is a similar doctor up in your area, but you have to search for a doctor at a large teaching hospital etc.
I hope your daughter will be just fine
I have a lot of this diagnisis in my family, father,m cousin, sister's granddaughter etc. So, try to find out
Best regards
Kjellfrid
Synnove is offline   Reply With Quote
Old 01-10-2016, 12:43 AM   #3
Spyunge
New Member
 
Join Date: Jan 2016
Posts: 1
Default Cmt?

)y:HI Any thoughts that it could be CMT?
Quote:
Originally Posted by christineh View Post
Hello,
I am new to the group, hoping to gain knowledge or connect with someone that has the same issues. Does anyone on the board have knowledge of Neuromuscular Clubbed Feet. We have had NO positive results after surgeries and non invasive procedures to correct our daughters bilateral clubbed feet. Our Ortho Surgeon suggests an underlying neuromuscular condition.
Thanks for any help or info!!
Spyunge is offline   Reply With Quote
Old 01-10-2016, 12:52 AM   #4
Lara
Legendary
 
Lara's Avatar
 
Join Date: Sep 2006
Location: Northern Rivers
Posts: 10,264
Default

Hi Spyunge,

Welcome to NeuroTalk.

I just wanted to let you know that christineh only ever posted that one single message back in 2013, so it is possible she may not come back to check here.
__________________

.
Lara is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
statin use and neuromuscular disorders olsen Parkinson's Disease 3 06-13-2014 06:45 PM
Pregnancy, Childbirth and Neuromuscular Weakness? TreeLover General Health Conditions & Rare Disorders 1 10-15-2013 03:12 PM
Does any one with Rsd in their foot have abnormal knots around the bones in your foot lexiemae1 Reflex Sympathetic Dystrophy (RSD and CRPS) 10 08-09-2009 11:15 AM
Neuromuscular... Leslie Peripheral Neuropathy 1 09-02-2008 11:16 AM
Advances in Neuromuscular Disease CME BobbyB ALS News & Research 0 08-15-2007 07:17 AM


All times are GMT -5. The time now is 05:59 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy