Dee.... thanks for sharing. Much is very familar--My constant headaches (mostly back of head/neck pain), severe spasms , etc. Dx'd : occiptal neuralgia
but the reason or DX for drop attacks/ falls??? Seizures were ruled out . Chiari was suspected by PCP many years ago but specialists/ tests say NOT. So, what -- why do I have these drop attacks/falls???

Began after I was hit by a car 12 yrs ago. TBI -Traumatic Brain injury - is what's been blamed for ongoing brain & other neuro problems but TBI/PCS (Post Concussive syndrome) is broad & often controversial and for me, w/out any real, good treatment options or interventions.

Severe chronic pain & debilitating fatigue w/ sleep problems, did get DX: fibromyalgia
(which I too agree has become a waste basket Dx )
while FMs does cover some of my issues, still too many unanswered questions and ongoing problems.


I 've felt crazy & frustrated --going from DR to DR with so many issues & symtoms; tests , when done, have been Negative. Good news on one level but I do feel there's a real reason for my problems.

I've wondered has something been missed, am I testing Negative to something I may have --like RA or other auto immune disorder
-my mother had Many as does my father; many of their symptoms & manifestations I also have .
I know several of these do have genetic links. Learned that some people are SeroNegative, which makes getting Dx & treatmt very challenging. while appearing like a neurotic hypochondriac or drug seeker.

I don't know ... except that I'm in pain , dysfunctional and trying to remain hopeful that someone/thing will help


I will research Ehlers-Danlos more. Thanks for sharing your story.
Wish you the Best...



ROSE.... I've been taking methylB12--1000mcg day; perhaps should be using more?? also take B complex , Magnesium & other supplements & vitamins. will check out sites & forums-for VItamins, supplements, etc-- again to see if there's something else. There's lots of excellent info there, thanks to you & other knowlegable contributors...
Fatigue is one of my worst problems. mainly from sleep problems (due to pain & neuro stuff)