Go Back   NeuroTalk Support Groups > >

Neuromuscular In memory of Rose Marie.

Turned Down by Neuros--Why?

Reply
 
Thread Tools Display Modes
Old 05-13-2018, 08:31 PM   #1
gnnmi
New Member
 
Join Date: Dec 2011
Posts: 5
Default Turned Down by Neuros--Why?

Maybe someone can give me a clue as to why I'm being turned away. I am 67, female, with several autoimmune challenges.

I have been diagnosed with idiopathic neuropathy. A nerve conduction study showed damage in both arms and both legs. The neurologist became upset with me when my naturopath sent her a note asking for a brain scan to rule out MS.

She raised her voice and told me she did not want a naturopath "butting in" and that I definitely do not have MS. She said that I have severe spinal cord degeneration throughout my spine. I looked over my spine MRI reports but they do not mention spinal cord degeneration. I asked a rheumatologist and my PCP to review the same records and they also did not see such evidence.

I have since developed scary muscle spasms in my thoracic muscles and hands. I've had them in my feet and legs all along, which the first neurologist originally attributed to disc problems in the lower spine. I had a series of steroid shots and am not sure they helped. I asked my PCP for a referral to get a second opinion.

My PCP referred me to a second neurologist who reviewed my records and (after four months of waiting) said he was unable to see any reason to see me. I was then referred to a large neurology institute. I got a call from them saying that a couple doctors had reviewed my records and unfortunately they were unable to meet my needs. It is impossible to get through their phone system to speak to the person who called so I have not idea what made them turn me down.

I have not made any requests or demands from these additional doctors. Does anyone have any idea of why I am being turned down and what I should do next? I am having a lot of worsening symptoms and still don't know what the cause of my overall neuropathy is. I did find out through my naturopath that I have elevated lead in my system but have not yet had a chance to mention that to my PCP and it was not in the records these other neurologists looked at. Thank you. I am stymied.
gnnmi is offline   Reply With Quote
Old 05-14-2018, 07:38 AM   #2
winic1
Member
 
Join Date: Feb 2011
Posts: 262
Default

Have you seen and read the records that were sent to these other neurologists?
ALL of them?

I was getting turned down by home health care agencies, who would talk to me on the phone and assure me they could help, but then suddenly change to "no, we can't do anything" after talking to the original agency who had sent someone else out once. Every single one.

Turns out, the first physical therapist who came out for that evaluation (who both I and my husband said, "she's nuts or on drugs" as soon as she walked out the door) was indeed nuts or on drugs. She wrote that I was able to get dressed and walk and feed myself and everything without help. She wrote that I had gone out to my car by myself twice already (no, my car was squished beyond recognition in the accident. There was no longer any car to go out to.) It would take my husband and I until noon to get us both washed and dressed, as he had been injured also, but me much worse. We were eating food that volunteers were bringing, already cooked, to the house, on paper plates to avoid having to wash anything, as he had one arm in a cast, and a severe concussion, and I had broken shoulder, ribs, pelvis, as well as about 50% of my body covered with massive, still black bruises.
We didn't find out what she had written until a couple years later when we saw the records for the lawsuit against the guy who hit us. Sure wish I had known to look into them at the time. That horrid woman blew all help for us when we desperately needed it.

But, one incorrect statement, or a condemning comment from your first doctor, could be blowing your chances with the other doctors. You need to find out what is being sent to them. Doctors (and other medical professionals) make mistakes. They mix up records. (This happens at an alarmingly high rate. I was shocked at how often when I was reviewing my records, and how many mis-diagnoses were there, because they were looking at someone else's information.) And, they say things they really shouldn't, because they don't think they will get caught.
winic1 is offline   Reply With Quote
"Thanks for this!" says:
gnnmi (05-14-2018), Jo*mar (05-14-2018)
Old 05-14-2018, 10:17 AM   #3
Jo*mar
Co-Administrator
Community Support Team
 
Jo*mar's Avatar
 
Join Date: Aug 2006
Location: USA
Posts: 25,546
My Mood: Turned Down by Neuros--Why?
Default

I was thinking the same thing, getting copies of those drs office records/notes, even if only a typo or word left out can make a big difference ..
But they make mistakes so best to go over them and see what is in those. And get it corrected if facts are wrong..

It may cost a per page fee if printed out, unless it is digital office records and can be emailed, or on a cd or flash drive ..
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Community Guidelines linked @ at bottom of our pages.
Jo*mar is offline   Reply With Quote
"Thanks for this!" says:
gnnmi (05-14-2018)
Reply

Tags
naturopath, neurologist, pcp, records, spine

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Confused, Neuros disagree elusious Epilepsy 3 01-01-2013 03:04 PM
Today's visit to the neuros Sheltiemom18 Peripheral Neuropathy 6 09-22-2010 04:08 PM
Boston area neuros? Riverwild Multiple Sclerosis 8 03-30-2009 09:26 AM
Good and bad neuros - which is which? dahlek Peripheral Neuropathy 34 01-02-2008 11:05 PM
Do all neuros Suck turner Myasthenia Gravis 31 12-11-2006 07:45 PM


All times are GMT -5. The time now is 02:43 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy