Neuromuscular In memory of Rose Marie.


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Old 10-09-2006, 01:32 PM #1
mamafigure mamafigure is offline
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I decided last night, then went to the gp today and she agreed with me...this surgery is now officially off. The dr is very worried that something bad is happening, so she is contacting 2 specialists that I went to before and I will probably be having a true exploratory + colonoscopy without meds very soon...but on my terms.

mama
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Old 10-10-2006, 02:33 PM #2
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Good that you called her...take care of yourself!
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Old 10-10-2006, 02:59 PM #3
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I decided last night, then went to the gp today and she agreed with me...this surgery is now officially off. The dr is very worried that something bad is happening, so she is contacting 2 specialists that I went to before and I will probably be having a true exploratory + colonoscopy without meds very soon...but on my terms.

mama

How do you have a colonoscopy without meds? Just curious, I've never heard of such a thing. I've had one before and they loaded me up on at least two different (and powerful) drugs, I didn't know what was happening. Maybe there could be a happy medium, where you don't feel out of control but you're not suffering. I hope the surgery being called off is the right decision, I don't know the situation all that well and I'm no doc so I won't comment. Again, candles and well wishes is about the best I can do from Suthin Indiana.

SJ
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Old 10-10-2006, 05:52 PM #4
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Gabe, thanks.

Slim,
I won't ask anyone to go with me, so therefore I cannot take a mind altering drug, but mostly, I don't want to take versed.

me
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Old 10-12-2006, 01:13 AM #5
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Gabe, thanks.

Slim,
I won't ask anyone to go with me, so therefore I cannot take a mind altering drug, but mostly, I don't want to take versed.

me

Drugs are funny, I've always done well on Versed (as I hardly knew what was happening, it is indeed a powerful drug)! My mom doesn't like Versed either, everyone reacts differently. I have had problems with the narcotics though, the Demerol they gave me during my colonoscopy stayed with me for hours after the procedure, which would have been fine except they gave me a bit too much, felt like I couldn't breath for a long time. I've done fine on lower doses, when I had my GI scope done. Most times though these drugs hit you so fast you don't have time to think about it, they load you up pretty good during a colonoscopy, I didn't know where I was or what was happening and it hit me in under 5 seconds.

You know your own body better than anyone so go with your gut, if you don't want the meds than you're right, they probably will do more harm than good. Hope it's not too bad!
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Old 10-12-2006, 05:00 AM #6
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Well, I've gone downhill quite a bit this week and the drs didn't do much. I didn't want the colonoscopy, but became fairly comfortable with it, however now I don't think that I can take the effects of the prep.

I didn't work yesterday and am not supposed to work until my dr is back in the office, but am going in for about an hour to get things organized and get some paperwork done.

I called the obgyn and she won't do surgury without the colonoscopy.

The nurse at my gp is trying to get me a referral to a general surgeon that my husband went to. He is young, good lucking, but not personable and one of those in and out guys. I don't know if anything will come of it, especially with my phobias that have to be addressed.

mama
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Old 10-12-2006, 06:30 AM #7
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Awhhhh, Mamma~!

Im sorry to read about your roadblocks.

I hope it all works out to be something easy for you to get a handle on.
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~Alicia~who feels that four kids with a mitochondrial disease is like patching the Titanic with a bandaid at times, but I say.."SHUT UP, Sit Down and ROW"...
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Old 10-12-2006, 07:09 AM #8
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Thanks, Alicia. I am hoping...
mama
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Old 10-13-2006, 12:43 AM #9
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Well, I've gone downhill quite a bit this week and the drs didn't do much. I didn't want the colonoscopy, but became fairly comfortable with it, however now I don't think that I can take the effects of the prep.

I didn't work yesterday and am not supposed to work until my dr is back in the office, but am going in for about an hour to get things organized and get some paperwork done.

I called the obgyn and she won't do surgury without the colonoscopy.

The nurse at my gp is trying to get me a referral to a general surgeon that my husband went to. He is young, good lucking, but not personable and one of those in and out guys. I don't know if anything will come of it, especially with my phobias that have to be addressed.

mama


The prep I had to take in 2004 was nasty. Drinking salt water for 5 hours straight (which is what it tasted like) has the tendency to cause vomiting, which I can't handle. It did the job though. The reason I mention this is because they're supposed to have pills now which I imagine would be much more palitable than a gallon of sea water. I've heard good things about the pills from a few different people.

My doc is old and ugly but he's one hell of a nice guy and has great bedside manner, I was lucky to find him as I've had bad luck the last 6 or 7 years with docs (mostly neuros).

Again, I hope things work out for you and I'm truly sorry that you're suffering so much, wish there's more I could do, you seem like such a nice person!!

Hugs,

SJ
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Old 10-13-2006, 11:26 AM #10
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I jsut got a call from my gp and I "have" to meet with the gastro dr again and have a colonoscopy. I don't think that this is a good idea, but no one is listening.

I am so scared,
Mama
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