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Old 10-16-2006, 09:13 AM #1
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BobbyB BobbyB is offline
In Remembrance
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
BobbyB BobbyB is offline
In Remembrance
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Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
Thumbs up Help Pass The Als Registry Act

Contact Your Members of Congress TODAY!

HELP PASS THE ALS REGISTRY ACT


http://capwiz.com/alsa/issues/alert/?alertid=9048996
--------------------------------------------------------------------------------We are now closer than ever before to passing the ALS Registry Act (H.R. 4033/S. 1353). In fact, more than 200 Representatives and 45 Senators have cosponsored the bill – that’s just short of the 218 needed for a majority in the House and 51 in the Senate! Because of our efforts and those of advocates like you, there is a chance that Congress may act on the bill before they adjourn this year. But time is running out.

Therefore we need your help TODAY! We urge everyone in the ALS community to contact their Members of Congress and ask them to cosponsor the ALS Registry Act. Your actions could determine whether Congress votes on the ALS Registry Act this year. A letter you can send directly to your Member of Congress is available in the Advocacy Action Center of our website.

If you don’t know the names of your Members of Congress, don’t worry. Just enter your zip code on the Advocacy Action Center and the site will identify them for you. And if your Members already have cosponsored the bill, the site automatically will generate a thank you letter to send to them.

But don’t delay. Act NOW! Urge your Members of Congress to cosponsor the ALS Registry Act. And ask your friends, family and colleagues to do the same.

After you enter your zip code on this page and send the letter to your Senators, don't forget to also send a letter to your U.S. Representative. Go to the main page of the Advocacy Action Center and select the Action Alert link to H.R. 4033.

If you have any questions about this Action Alert or would like additional information, please contact Patrick Fritz in the Advocacy Department of The ALS Association at pfritz@alsa-national.org or toll-free at 1-877-444-ALSA.

Thank you!

please go and enter your zip code and help this pass.
http://capwiz.com/alsa/issues/alert/?alertid=9048996

Advocacy Action Center
Update on registry progress:

Thanks to the outreach of advocates from across the country, several key Senators and Representatives have signed on as cosponsors of the ALS Registry Act (H.R. 4033/S. 1353). This is a direct result of the more than 1,100 e-mails that ALSA Advocates sent to Congress in the past week alone. Thanks to your hard work we now have 208 cosponsors in the House and 48 in the Senate, a tremendous show of support that gives us momentum when Congress returns after the elections. Recent cosponsors include:
Rep. Melissa Bean (D-IL)
Sen. John Kerry (D-MA)
Sen. Jim Talent (R-MO)
Rep. Jon Porter (R-NV)
Rep. Jeb Bradley (R-NH)
Rep. Rush Holt (D-NJ)
Rep. Melvin Watt (D-NC)
Sen. Ron Wyden (D-OR)
Rep. Darlene Hooley (D-OR)
Rep. John Murtha (D-PA)
Rep. Dave Reichert (R-WA)
Congress has adjourned for the elections, but they are expected to return to Washington for a short period of time later in November before adjourning for the year. Therefore, we likely will only have a small window of time to pass the Registry Act.
We currently are working closely with the lead sponsors of the ALS Registry Act to develop a strategy for passing this legislation when Congress reconvenes after the November elections. However, we need you stay involved and actively participate in our advocacy efforts.
If you have not already contacted your Members of Congress within the past few weeks and urged them to cosponsor the ALS Registry Act, please do so and ask your family and friends to reach out to their Members of Congress as well.
Sample letters are available by selecting the link to the Advocacy Action Center, which can be found on the ALSA website. The site will identify your Members of Congress for you and will allow you to send an e-mail directly to them. Please personalize the sample letter we have provided and let your Members of Congress know how this disease truly impacts their constituents.
If you have any questions or would like assistance reaching out to your Members of Congress, please contact Patrick Fritz in The ALS Association Advocacy Department at pfritz@alsa-national.org or toll-free at 1-877-444-ALSA.
Thank you!

please help us pass this at
http://capwiz.com/alsa/issues/alert/?alertid=9048996

thank you for your help
__________________

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ALS/MND Registry

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