Hi Ellelee,

I am in my 60s and am presenting very similar to you. I am wondering how you are and if anything has helped your recovery? I was on Immunoglobulin therapy for 3-months which didn't help my initial symptoms (weakness and foot drop in 1 leg). I went off and was put on chemo and have declined (within 6-months) to the point where I can no longer walk. I can stand for a few seconds of that. I have to use a wheelchair. My antibodies just started dropping so I'm hoping to stabilize and gain some mobility. I am wondering where you are in your journey and if anything has helped?

Anyone have a similar experience? Needing words of encouragement. I want my life back.


QUOTE=ellelee;466676]I have just been diagnosed with MMN myself. I'm only 23 years old and I've been having weakness in my left leg. I can't get up, walk, stand for long periods or climb stairs. I've found out that its now in both legs and both arms. I was told that i had a viral infection and my white blood cells attacked the virus then saw my nerves as a threat and attacked them as well. I also suffer with drop foot syndrome. I'm very miserable and my knees keep giving out on me. When I fall i can't get myself up someone has to literally pick me up. I was suppose to go see another Dr. to get a second opinion,but they can't fit me in. I believe that i'm having the iv treatment done thursday. I'm very scared and nervous. I want to be cured so i can pick up my son and run after him. Can anyone tell me what i should expect from the treatment?[/QUOTE]

I haven't officially been diagnosed yet as I need to start IViG treatment as soon as my doctor can organise it however, I know I have MMN.

I have muscle atrophy of my right hand (no thumb muscle) which means I cannot pick things up properly, have difficulty writing and cannot do up buttons or zippers or turn a key in a lock with my dominant hand. I also have difficulty using a knife to cut up food.

My fingers cramp as does my right leg and I am constantly lethargic.

It's taken 10 years to get to this point where I may finally get an answer to my problems, I just wish it hadn't taken so long as if it had been detected earlier I may not have had muscle wastage and may have recovered much quicker.