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06-04-2009, 08:11 PM | #21 | ||
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06-26-2009, 12:22 PM | #22 | ||
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07-27-2009, 01:53 PM | #23 | ||
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09-09-2009, 08:43 AM | #24 | ||
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I have MMN. I first experienced symptoms almost 20 years ago. They were so mild I did not act upon them at first. When I did it took several attempts and multiple doctors to get a diagnosis. I start IVIG on Sept 14 2009. Anyone had luck with Rituximab? My symptoms seem to be progressing more quickly now with the jerks getting worse but I have not had cramps yet.
I live in Dallas and am looking for a support group or even one other person to talk to. Nate |
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09-23-2009, 06:04 PM | #25 | ||
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12-09-2009, 12:45 AM | #26 | ||
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Hi Nate,
I would be happy to talk with you. I have had MMN for 20 years and have learned a lot about what helps. Quote:
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12-09-2009, 12:49 AM | #27 | ||
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Hello, I'm curious about these aches you get. I have had MMN for twenty years and I don't have any pain or aches. I was curious what type of aches you get and what you think is causing them.
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12-14-2009, 09:04 AM | #28 | ||
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I also have MMN. officailly diagnosed last year after initially being diagnosed with MND (ALS). I've had 2 bouts of IVIG which has had some positive effects. Given me a little strength back last one was sep 2009 so i'm ready for another session.
Would love to here from others and their experiences of the disease. Also what other treatments are out there |
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12-15-2009, 11:51 PM | #29 | ||
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You might want to talk to your doctor about Rituxan (Chemotherapy) it has done wonders for me in a matter of 10 months, I noticed HUGE improvements of strength and stamina with this treatment. While im taking Rituxan i still take IVIG treatments. Best of Luck |
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01-02-2010, 11:22 AM | #30 | ||
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Kelly |
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