Neuromuscular In memory of Rose Marie.


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Old 12-15-2009, 11:51 PM #11
fireman0224 fireman0224 is offline
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fireman0224 fireman0224 is offline
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Join Date: Jan 2009
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Quote:
Originally Posted by SamS View Post
I also have MMN. officailly diagnosed last year after initially being diagnosed with MND (ALS). I've had 2 bouts of IVIG which has had some positive effects. Given me a little strength back last one was sep 2009 so i'm ready for another session.

Would love to here from others and their experiences of the disease. Also what other treatments are out there

You might want to talk to your doctor about Rituxan (Chemotherapy) it has done wonders for me in a matter of 10 months, I noticed HUGE improvements of strength and stamina with this treatment. While im taking Rituxan i still take IVIG treatments.

Best of Luck
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