Quote:
Originally Posted by kjjones
Hello all. My husband has had two treatments of the IVIG without any improvement. In fact he continues to get worse. Has anyone NOT responded to IVIG treatment, but responded to another form of treatment? With no response, I am wondering if he has MMN or something else...the worst case being ALS. He has no symptoms with his mouth...all is well. Please give me your feedback. Also...anyone with MMN that got so bad you had to be in a wheelchair? Karin:confused:
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I'm still on IVIG to keep me steady, but i am also in Rituximab which is a chemotherapy and has done wonders for me. I started this treatment in December of 2008 and could not lift myself up on my toes, now i can. As well as run and not be to exhausted like i used to. The only muscles im still having some trouble with are my finger and wrist extensions and my anterior tibialis muscle (shin bone muscle ) which causes foot drop. I would ask your doctor about rituximab treatments. I also had it so bad to where i had to walk with i cane, and i'm 26 and a former firefighter. So , I know what you and your husband are going through.
Best Wishes,
Steven
05-11-2010, 08:21 PM
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