Hi Nerd,
Welcome to the Forum.
I would be very interested in talking to you, perhaps via email. I was diagnosed in 09 but we now know that symptoms had been showing themselves for years before (unfortunately no one recognized them). At any rate, I'm very curious to know a bit more about you. I, too, am from BC and you are the first person from BC that I have heard that has MMN (I know there must be others but none, to my knowledge, have emerged on any of the various forums). My specialist is also from Vancouver. Do you have Dr. G by any chance?
I'm sorry to hear that things are continuing down. Hopefully the next round of Cyclophosphamide will help. I was on it for 6 months but the only thing it did for me was make me ill and make my eyes hurt. I was on Rituxamib, every 10 weeks, for 1 year and though I don't know for sure if that helped, it did allow me to get back to a gym where I've slowly built up my strength. It's still a struggle to walk or do any fine motor skills (like do up buttons, tie shoes or cut up food) but my ability to walk, using braces, has improved. FYI, I'm male, 59. Anyways, if you'd like to chat off forum, fire me an email.
**. Sorry don't like to use the email address on forums...too much spam already, likely from bots harvesting them.
Cheers,
Keith