Neuromuscular In memory of Rose Marie.


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Old 07-11-2008, 12:51 PM #1
Curls47 Curls47 is offline
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Join Date: Dec 2006
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15 yr Member
Curls47 Curls47 is offline
Junior Member
 
Join Date: Dec 2006
Posts: 45
15 yr Member
Default Trying to get comfortable

Hi all,

I've had adult on-set non-genetic spinal muscular atrophy for 11 years now. This disease affects all the muscles in my body and I have been gradually losing weight over the years. Prior to my illness I weighed 130 pounds. I've been hanging in there up until last winter and that was a nightmare. I am down to 88 pounds and I must say, it's not pretty.

My problem is this. When I lie/lay down at night I can feel every bone in my body. Ribs, hip bones, back bones all feel like I'm resting on cement. My mattress is fairly new and I have a new mattress pad but there just seems like there is something else I could do. I am still independent and live alone (widow). Has anyone gone through this? Any ideas?

Thanks,

Susan
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