Neuromuscular In memory of Rose Marie.


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Old 11-01-2006, 07:56 AM #1
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Default How'dya make out yesterday, Mamma?

Any new plans from your doc visit yesterday? Just sitting here thinkin about you. Hope it went well, and was prodiuctive for you.
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~Alicia~who feels that four kids with a mitochondrial disease is like patching the Titanic with a bandaid at times, but I say.."SHUT UP, Sit Down and ROW"...
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Old 11-01-2006, 08:11 AM #2
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Hi, Sweetie,
Thanks for thining about me. You are too kind. Shirley had a big dr visit yesterday, too. I hope that she posts.

Your party sounds awesome! Do you have room for some Yanks?

I don't know what to say about my visit. If I was a fly on the wall, I would have thought that it was a good visit with positive plans in the works. As me, the nervous ninny, it was a difficult time.

I found out that the facility was a teaching facility, and was asked to sign a statement that students could be involved. I know how important this is, but I am too shy to want anyone extra in the room, so I asked and was told not to sign it. So, after being in the room for awhile, a guy comes in. I took a deep breath, answered his questions, hoping that that was the end. No, he came back for the exam. I was so incredibly embarrassed even though he really didn't see anything.

I had made up a small notebook with dr's notes, test results, drug interactions, etc. and a page in the back with my fears and suggested solutions. The guy liked the book.

The dr was nice. She doesn't know what the problem is. She said that adhesions are probably involved at some level because most everyone has them, but after these many years she is looking for something else. She is also concerned that the pain has a distinct focus.

So, she wants me to bring my ct scan in and she is making an appointment to see another obgyn this week. She is talking about having that dr and herself doing the surgery. She hinted very strongly that a hysterectomy will be part of the equation.

I asked her how long it would be (before surgery). She said that it would be soon.

I asked her about the page in the back. She said that we would talk about it later. I didn't take that as good news.

I cried myself to sleep, woke up played on the computer for awhile, laid back down, got back up, and so on. Someone should kick me, but I am so incredibly scared...and if it isn't for anything serious, why get surgery for pain? There is close to a 90% chance that adhesions will reform.

Anyway, there is your report. Long, self-centered, and full of whining.

Take care,
mama

Last edited by mamafigure; 11-01-2006 at 08:50 AM. Reason: absent minded
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Old 11-02-2006, 02:49 AM #3
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Angry update

The staff person from the surgeon's office left a message for me on my home phone. She made my appointment with the obgyn for December 2. I am very upset.

Today has been the most painful, and here I am up again in the middle of the night.

I'm going to try to call one of the surgeon's offices and get something going. I am supposed to see her on Tuesday, but it is supposed to be after the obgyn.

So now I'm not only apprehensive about the surgery, I am frustrated. I cannot postpone anymore. Christmas will be here soon.

mama
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